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BPSU - 30th anniversary report (2016)

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
Document

BPSU studies - impact

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
Resource

infoKID evaluation (2017)

infoKID launched in March 2014 to provide information on kidney conditions, tests and diagnoses, treatments and supporting information. This evaluation, published in February 2017, aimed to understand how parents, carers and patients, and healthcare professionals use the website.