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Our resources and documents include training and career guidance, research and audit reports, policy statements, service standards and online learning. You can use the search or filter to find what you're looking for.

Document

BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Children and young people's voice

Patient experience

Patient involvement

Research

Document

Early investigation and management of children with acute non-A-E hepatitis, with and without liver failure

This clinical framework is intended to provide a structure for the investigation, transfer and management of children with novel non-A-E acute hepatitis in the context of an emergence of a novel disease. The recommendations within this guidance are based on existing principles of management of ac...

Hepatology

Resource

Epilepsy12 - national organisational audit and clinical audit - 2023

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2023, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

Resource

Epilepsy12 audit - submit data for 2018-2022

The current round of Epilepsy12 comprises two main data processing and reporting components - the organisational audit and the clinical audit. This page provides user guides, instructional videos and webinars in support of these two components.

Community child health

Document

Epilepsy12 Round 3 Methodology and Datasets

Round 3 of the Epilepsy12 audit was delivered between 1 April 2017 and 31 March 2022. This page provides details on the methodology and data submission process for Round 3. This methodology extends to Round 4, Cohort 4.

Neurology

Conditions

Epilepsy

Resource

Facing the Future - standards for children and young people in emergency care settings

These standards aim to ensure that urgent and emergency care is fully integrated to ensure children are seen by the right people, at the right place and in the right setting. Emergency departments that see children submitted data to our national audit, and results show how well standards are bein...

Facing the Future - emergency care

Integrated care

Models of care

Workforce

Resource

Facing the Future - together for child health

These standards apply across the unscheduled care pathway to improve healthcare and outcomes for children. They focus on the acutely mild to moderately unwell child.

Facing the Future - care outside the hospital

Integrated care

Workforce

Resource

GMC's 'Good medical practice' - consultation response

In July 2022 we responded to the General Medical Council's consultation on 'Good medical practice', which provides guidance on the standards of care and professional behaviour that the GMC expects from all doctors and other medical professionals. The page has a summary, with the full response availa...

Equality, diversity and inclusion

Resource

Immediate telephone for specialist advice - WESPGHAN

This page provides a best practice example for standard 9 of Facing the Future: Standards for acute general paediatric services, which explains the Wessex Paediatric Gastroenterology, Hepatology & Nutrition Network, which provides immediate specialist telephone advice across the Wessex region. Acces...

Facing the Future - acute general paediatric services

Models of care

Service planning