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Achieving consensus - on prevention, recognition and management of conflict in paediatric practice
Conflict can arise between health professionals and the parents of children not only where there is disagreement on the withdrawal or withholding of life sustaining treatment but also in more general routine care. In this paper for paediatricians and other health professionals we attempt to suggest ...
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BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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BPSU 'Orange Card' reporting scheme - applying to run a study
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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BPSU Rare disease tea party - reports from past events
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
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BPSU reporting instructions
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
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BPSU study - Surveillance of female genital mutilation (FGM) in children and young people under the age of 16 in the UK and ROI
Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...
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Chatterbox game on five ways of healthy wellbeing
Based on the classic children's game, this game provides ‘Facts vs Myths’ surrounding the subject of mental health, which can enable a teacher/healthcare professional to facilitate a discussion regarding this issue.
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Child Protection Evidence - Fractures
Child Protection Evidence is a resource available for clinicians across the UK and internationally to inform clinical practice, child protection procedures and professional and expert opinion in the legal system. This systematic review evaluates the literature on abusive and non-abusive fractures.
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Communicating the aims and outputs of the NNAP effectively to parents and families - a case study for NNAP
This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...