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Professor Neal Halfron, an innovative thinker in child health service design, delivers "All Children Thrive", a webinar which explores emerging challenges to child health in America.

In 2018 we responded to the Welsh Government’s draft Bill for Autism. We welcome calls for increased resource to support children with Autism Spectrum Disorder (ASD) and improve outcomes for children with ASD. However, we are concerned about the possible unintended consequences of this proposed legi...

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.

This report provides guidance for establishing and managing formal and informal networks within children’s health services. Evidence-based examples, tips and checklists support paediatricians seeking to develop effective networked care, with patients’ needs at the heart of delivery.

This page provides a best practice example for standard 10 of Facing the Future: Together for child health standards, which describes the clinical assessment tools used in Luton as common pathways for conditions in emergency care. The tools have been embedded in practice to increase confidence in cl...

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...