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Conflict can arise between health professionals and the parents of children not only where there is disagreement on the withdrawal or withholding of life sustaining treatment but also in more general routine care. In this paper for paediatricians and other health professionals we attempt to suggest ...

Acute and emergency care departments face profound pressures. This report outlines recommendations for delivering a sustainable and resilient emergency care system. It is intended for Government officials, national bodies, commissioners, providers, professional bodies and clinicians.

In 2017 we responded to the Science and Technology Committee’s inquiry into evidence-based early-years intervention.

Anaphylaxis is a severe, life-threatening allergic reaction. This is one of several allergy care pathways, which tell health professionals what they need to know in order to provide the best care possible.

In 2018 we responded to the Welsh Government’s draft Bill for Autism. We welcome calls for increased resource to support children with Autism Spectrum Disorder (ASD) and improve outcomes for children with ASD. However, we are concerned about the possible unintended consequences of this proposed legi...

What keeps children in care happy, healthy and well? Care-experienced children and young people worked with RCPCH &Us to create these free resources, including 'passports', a poster and games to help share who they are, how they are feeling and what support they would like - as well as top tips for ...

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...