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BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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BPSU 'Orange Card' reporting scheme - applying to run a study
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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BPSU Rare disease tea party - reports from past events
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
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BPSU reporting instructions
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
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BPSU study - Surveillance of female genital mutilation (FGM) in children and young people under the age of 16 in the UK and ROI
Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...
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Child Protection Evidence - Retinal findings
Child Protection Evidence is a resource available for clinicians across the UK and internationally to inform clinical practice, child protection procedures and professional and expert opinion in the legal system. This systematic review evaluates the literature on abusive and non-abusive retinal find...
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Consultant delivered care - an evaluation of new ways of working in paediatrics (2012)
This report concludes that children would receive better care if they had 24/7 access to a consultant or equivalent senior doctor. This module is recommended in our Facing the Future service standards.
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Facing the Future - standards for acute general paediatric services
It is essential that paediatrics is a 24 hours a day, seven days a week specialty, with the most experienced doctors present at the busiest times. Our report sets out ten standards for high quality, safe and sustainable acute general paediatric services.
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Facing the Future - standards for children and young people in emergency care settings
These standards aim to ensure that urgent and emergency care is fully integrated to ensure children are seen by the right people, at the right place and in the right setting.
We're encouraging emergency departments that see children to submit data to our national audit, so we can to monitor how w...