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BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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BPSU 'Orange Card' reporting scheme - applying to run a study
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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BPSU Rare disease tea party - reports from past events
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
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BPSU reporting instructions
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
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Breastfeeding in the UK - position statement
The UK has one of the lowest rates of breastfeeding in Europe. We strongly support national policies, practices and legislation that are conducive to breastfeeding, as well as promotion, advice and support to new mothers. Our messages and recommendations in this statement are specific to the UK.
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Career support service
Each of us faces questions, dilemmas, even big problems in relation to our career... Our service provides personal career guidance through a network of advisors. It's free of charge to RCPCH members and fellows at different career levels - including trainees, SAS doctors and consultant paediatrician...
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Communicating the aims and outputs of the NNAP effectively to parents and families - a case study for NNAP
This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...
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Data collection of antenatal steroids given - a case study for NNAP
The following case study from Calderdale and Huddersfield NHS Foundation Trust was included in the 2018 annual report on 2017 data, and highlights how NNAP results can be used as a basis for identifying, and undertaking, local quality improvement activities.
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Improvements to two year follow up assessments for at risk neonates in a district general hospital setting - a case study for NNAP
This case study was included in the 2017 National Neonatal Audit Programme annual report to highlight how a neonatal unit has used its results from the National Neonatal Audit Programme as a basis to identify and implement local quality improvement activities. You can download the full case study be...