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In November 2023, we responded to the Scottish Government's consultation on Minimum Unit Pricing (MUP). MUP was implemented in Scotland in 2018 and the consultation sought to discern whether it ought to continue. Below is a short summary, with our full response available in the downloads section.

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...