All resources

What keeps children in care happy, healthy and well? Care-experienced children and young people worked with RCPCH &Us to create these free resources, including 'passports', a poster and games to help share who they are, how they are feeling and what support they would like - as well as top tips for ...

For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.

Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a retrospective epidemiological review of all-cause mortality in the four nations of the UK.

Child Protection Evidence is a resource available for clinicians across the UK and internationally to inform clinical practice, child protection procedures and professional and expert opinion in the legal system. This systematic review evaluates the literature on abusive and non-abusive bites.