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For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.

Female genital mutilation (FGM) is a procedure which involves deliberately cutting or causing injury to the female genitals. This can include partial or total removal of the external female genitalia intentionally for non-medical reasons. There are no health benefits of FGM for girls and women and c...

The Royal College of Paediatrics and Child Health and British Paediatric Neurology Association has developed this Q&A in light of recent developments in this area. It advises on the legality and safety of cannabis-based products and considers the evidence base for their potential harms and benefits.

The 2019 UK General Election is an important opportunity to advocate for children, young people, and the paediatricians and child health workers who care for them. This document makes the case for the next government to invest in our workforce, put child health at the heart of policy making and impl...

CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...

A portfolio of events and support for current, new and aspiring paediatric clinical leads and clinical directors of children’s services. Participants may join the full programme, or any individual event in any order.