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Cannabis-derived medicinal products - questions and answers
The Royal College of Paediatrics and Child Health and British Paediatric Neurology Association has developed this Q&A in light of recent developments in this area. It advises on the legality and safety of cannabis-based products and considers the evidence base for their potential harms and benefits.
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Child Health Reviews - UK : Mortality and morbidity in children and young people with epilepsy (2013)
CHR-UK was a UK-wide programme of work, systematically examining mortality and morbidity in children and young people between their 1st and 18th birthdays. This report is a themed review of cases of mortality and morbidity in children and young people with epilepsy at all stages of the care pathway,...
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Clinical leads development programme
A portfolio of events and support for current, new and aspiring paediatric clinical leads and clinical directors of children’s services. Participants may join the full programme, or any individual event in any order.
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Epilepsy Passport
This paper record gives essential up-to-date information about a child or young person’s epilepsy. This includes their emergency care plan, medication history and key professional contacts. You can download and print the Passport and order one or more free wallets to keep it safe.
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Epilepsy Passport evaluation (2018)
Two years after its launch, we carried out an evaluation to understand how healthcare professionals, children and young people and their families use the Epilepsy Passport. This tells us which aspects of the Passport have been successful and which need improvement.
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Epilepsy12 - methodology, information governance and datasets for Round 3
This page provides details of the methodology, datasets and related information governance processes for Round 3 of this clinical audit.
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Epilepsy12 - national reports from 2009-2014
Rounds one and two of Epilepsy12 ran between 2009 and 2014 with paediatric services across the whole of the UK taking part. You can download reports for both rounds, including the full national reports and versions adapted for parents, carers, children and young people.
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Epilepsy12 & OPEN UK National Conference 2018 resources
On 22 June 2018, more than 140 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the inaugural Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children an...
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Epilepsy12 audit - submit data for 2018-2020
The current round of Epilepsy12 comprises two main data processing and reporting components - the organisational audit and the clinical audit. This page provides user guides, instructional videos and webinars in support of these two components. Data collection for the organisational audit is now ope...
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Epilepsy12 National Organisational Audit Report 2018
This is the first formal output of Round 3 of the Epilepsy12 audit. It describes the organisation of paediatric epilepsy services for children and young people in England and Wales, as at April 2018. It shows improvements in some areas, including numbers of epilepsy nurse specialists and paediatrici...