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BPSU - 30th anniversary report (2016)
For over 30 years the British Paediatric Surveillance Unit has been facilitating research into childhood rare diseases and disorders. To mark this milestone and to celebrate the Unit's ongoing impact we published our 30 year anniversary report.
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BPSU impact - case studies
The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.
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BPSU 'Orange Card' reporting scheme - applying to run a study
The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
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BPSU Rare disease tea party - reports from past events
Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
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BPSU reporting instructions
Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study, and for previous months.
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Child Protection Evidence - Visceral injuries
Child Protection Evidence is a resource available for clinicians across the UK and internationally to inform clinical practice, child protection procedures and professional and expert opinion on the legal system. This systematic review evaluates the literature on abusive and non-abusive visceral inj...
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Facing the Future - standards for children and young people in emergency care settings
These standards aim to ensure that urgent and emergency care is fully integrated to ensure children are seen by the right people, at the right place and in the right setting.
We're encouraging emergency departments that see children to submit data to our national audit, so we can to monitor how w...
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Giving feedback about your health service as a child or young person
Want to give feedback about an experience at your hospital or clinic and not sure where to start? Maybe you have had bad treatment, or didn’t understand what was said to you or didn’t feel right? Watch our video to find out how to give feedback, and download our template letter and example letter.
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Immediate telephone for specialist advice - WESPGHAN
This page provides a best practice example for standard 9 of Facing the Future: Standards for acute general paediatric services, which explains the Wessex Paediatric Gastroenterology, Hepatology & Nutrition Network, which provides immediate specialist telephone advice across the Wessex region. Acces...
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Informatics for quality
Informatics is used in everyday actions of healthcare professionals. It enables the delivery of high quality, accurate and timely care to patients - from booking appointments to conducting surgical procedures. In particular, SNOMED-CT is an international terminology for recording patient data, and y...