How are we doing? Help us improve your diabetes healthcare

Our survey enables patients and parents to provide structured feedback, to have their say in how their paediatric diabetes service can better meet their needs, as well as affirm and acknowledge good care. As of 2 January, the survey is currently closed.
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We're the National Paediatric Diabetes Audit, or NPDA, and we ran a Parent and Patient Reported Experience Measure (PREM) survey, to gain an understanding of parent and patient perspectives and experiences of the care received over the previous six months.

Our aim was to get information that leads to better care for children and young people living with diabetes. 

What are the PREM surveys?

The PREM surveys enabled patients and parents to provide structured feedback, to have their say in how their paediatric diabetes service can better meet their needs, as well as affirm and acknowledge good care.

The results of the surveys will be used to identify local and national areas of achievement and areas where improvements need to be made. There is a survey for children and young people with diabetes, and one for parents and carers. They are available in English, Welsh, Polish and Urdu (Pakistani) languages.

Who could complete a survey?

Any child or young person who had received care from a paediatric diabetes clinic in England or Wales within the past six months, or their parents or guardians.

To find out more, please download an information sheet below.

How long did the PREM survey run for?

The PREM survey ran from 2 August 2021 until 2 January 2022. The PREM survey is now closed. 

Prize to be won!

Respondents who successfully completed a survey had the option to add their name into a prize draw. Two winners - one a child or young person with diabetes, and one a parent or carer - will be selected at random to win a £50 Amazon.co.uk eGift voucher. You can download the terms and conditions of entry below.

What are our unit response numbers?

The more responses collected, the richer and more representative the data about each service will be. The minimum number of responses per unit needed to enable generation of a report is ten. 

To help support PDUs to monitor their data collection, a Microsoft Excel spreadsheet with the response numbers from both surveys for your clinic has been made available to download below. 

Support resources

The following resources are available to support data collection for the PREM surveys:

  • Information sheet - provides all the information that paediatric diabetes teams or respondents will need to know about the PREM surveys
  • Unit response numbers spreadsheet - will help units monitor their efforts in data collection and will be updated regularly
  • Tips to maximise PREM survey response rates - success stories from teams who received good response rates in previous PREMs
  • Template communication to send to parents - to support units with engaging children and young people with diabetes and their parents to complete a PREM survey
  • PREM poster - can be printed for use within units. Parents/patients can scan the QR code on the poster to access the survey on their mobile phones.
  • Prize draw terms and conditions
  • PREM privacy information