Safe system framework - 2: Partnerships with patients and their families

Partnership with patients and family

This partnership is an area of increased growth. It is central to supporting the other core elements.

Responsibilities

Children, families and carers

  • Involvement in individualised care decisions
  • Family-led/patient–led care activities, such as regular family-centred/parent-focused times (rounding); key periods for family to remain with the patient
  • Uniqueness of young people’s needs, contribution and concerns

Clinicians and wider team

  • Involvement in individualised care decisions
  • Family-led/patient–led care activities, such as regular family-centred/parent-focused times (rounding); key periods for family to remain with the patient
  • Uniqueness of young people’s needs, contribution and concerns
  • Appropriate transfer and discharge communications including specific safety netting advice

Service or organisation 

  • Patient, parent and family focused information and resources
  • Patient, parent and family engagement in delivering improvement activities
  • Patient and parent experience/feedback surveys
  • Open and supported disclosure

Regional, national, networks

  • Support and resources to highlight and share good examples of patient and family partnership working for safe care

Resources

ReACT parent films (“If you see something, say something”) created for parents, and for staff supporting and empowering parents and families

Reducing Term admissions to Neonatal Units programme working to reduce harm and reduce separation of mother and baby

ASK SNIFF develop video based information resources to help families with young children understand signs and symptoms of acute illness so that they can spot when their child is sick

NHS England Improving Patient Experience: 

Being Open about what happened and discussing patient safety incidents promptly, fully and compassionately – the original framework

Duty of Candour regulation is to ensure that providers are open and transparent with people who use services

Me First – Information, tools and resources aimed at improving communication between healthcare professionals and children and young people.

Fixers – includes video resources of patient and parent stories, such as Kiatipat Tongyotha and Shelley Marsh

Guide to producing health information for children & young people published by the Patient Information Forum

References

DA Micalizzi, T Dahlborg and H Zhu (2015) Partnering with Parents and Families to Provide Safer Care: Seeing and Achieving Safer Care through the Lens of Patients and Families Current Treatment Options in Pediatrics. December 2015, Volume 1, Issue 4, pp 298-308

NHS England (2015) Improving Experience of Care through people who use services How patient and carer leaders can make a difference