British Paediatric Surveillance Unit

The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year.

British Paediatric Surveillance Unit logoThe Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH) to support research into rare childhood disorders.

What is the BPSU?

BPSU studies

News and publications

Patients and the public

Rare disease day

Information for investigators

Sir Peter Tizard research bursary 2014-15

Sign up for the orange reporting cards 

Contact BPSU

Department of Health: The UK strategy for rare diseases



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