British Paediatric Surveillance Unit


The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year.

The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH) to support research into rare childhood disorders.

Quick links

What is the BPSU?

BPSU studies



Patients and the public

BPSU 30th anniversary conference: rare diseases in paediatrics - from birth to transition - 23 February 2016

Information for investigators

Sir Peter Tizard research bursary 2015-16

International activities

Sign up for the orange reporting cards


Richard Lynn, Scientific Coordinator

Jacob Avis, Research Facilitator

Reporting cards (orange cards)

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