British Paediatric Surveillance Unit
The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year.
The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the UCL Great Ormond Street Institute of Child Health (ICH) with support from GOSH Children's Charity to facilitate research into rare childhood disorders.
Richard Lynn, Scientific Coordinator
- Email: firstname.lastname@example.org
- Tel: 020 7092 6173
Jacob Avis, Research Facilitator
- Email: email@example.com
- Tel: 020 7092 6174
Reporting cards (orange cards)
- Email: firstname.lastname@example.org