British Paediatric Surveillance Unit


The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year.

The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH) to support research into rare childhood disorders.

What is the BPSU?

BPSU studies

Patients and the public

Information for investigators

News and publications

Annual Report 2012-13

Contact BPSU

Department of Health: The UK Strategy for Rare Diseases

BPSU/RDUK/RCPCH YAP - Rare Disease Networking Event - 20 March



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