British Paediatric Surveillance Unit

British Paediatric Surveillance Unit logo

The British Paediatric Surveillance Unit (BPSU) enables doctors and researchers to find out how many children in the UK and Republic of Ireland are affected by particular rare diseases or conditions each year.

The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH) to support research into rare childhood disorders.

Quick links

What is the BPSU?

BPSU studies



Patients and the public

Rare Disease Day - 5 March 2015

Information for investigators

Sir Peter Tizard research bursary 2014-15

Annual report 2013-14

Sign up for the orange reporting cards 

Department of Health: The UK strategy for rare diseases


Richard Lynn, Scientific Coordinator

Jacob Avis, Research Facilitator

Reporting cards (orange cards)

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