BARD-online - a multi-purpose platform for paediatric cholestatic disorders, such as biliary atresia and related diseases
British Paediatric Surveillance Unit - enabling researchers to find out how many children in the UK and ROI are affected by particular rare diseases or conditions
International Network of Paediatric Surveillance Units (INOPSU) - collaborative organisation of 12 countries and 8,000 clinicians, with over 200 conditions studied so far
Eurosurveillance - European peer-reviewed scientific weekly online journal devoted to the epidemiology, surveillance, prevention and control of communicable diseases
Cardiff University - public research university composed of three colleges: Arts, Humanities and Social Sciences; Biomedical and Life Sciences;and Physical Sciences and Engineering
Lesotho-Wales Health Link by independent charity Dolen Cymru - creating life changing partnerships between communities, schools and health organisations
Orphanet - reference portal for information on rare diseases and orphan drugs
Public Health Wales - national public health agency to protect and improve health and to reduce health inequalities
Children and Young People’s Wales Diabetes Network - with representatives of all clinical professions, organisations, parents and young people
Welsh Clinical Network for Paediatric Nephrology - ensures equitable delivery of care to children with kidney disease