Established in 2009, Epilepsy12 has the continued aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies.
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Membership
Milestones - your magazineIn our winter issue we look at health inequalities in the broader sense. We explore how climate change anxiety can have an effect on children and young people's mental health and we hear from members on patient safety and resolving conflicts.
Retirement - what's next?It can be a celebration of life’s work and an opportunity for a new chapter - explore our resources and blogs by members navigating this period. We invite Senior Members/Fellows and Honorary Fellows to our regular events. -
Education and careers
Progress+Our two-level paediatric training programme, live as of August 2023, aims to to flexible and fulfilling. We encourage trainees and trainers to read the curriculum and syllabi, FAQs and other resources. -
Work we do
Making EDI everybody’s businessWe look at how we can further embed equality, diversity and inclusion into everything we do at the College. -
Resources
"Perfectly imperfect"The front cover of our Epilepsy12 organisational and clinical audits report for 2023 embodies the spirit of resilience. The documents give insight into the diagnosis and care of children and young people with epilepsy, and the organisation of services.
"All together with Daddy"The photo on our National Neonatal Audit Programme report is courtesy of Maddy and Baljit Singh, parents to triplets. NNAP assesses whether babies on neonatal units receive consistent high-quality care and identifies areas for improvement. -
Key topics
Industrial action in the NHSWe recognise that taking strike action is a personal choice. We have published frequently asked questions to support members, including advice especially for trainees and SAS doctors.
#ShiftTheDial on climate changeClimate change poses an existential threat, but it is not experienced equally. Our toolkit supports paediatricians to take action locally, regionally and nationally. Can you help make child health central to climate policy? -
News and events
RCPCH Conference 2024Next year's theme is 'Building a bright future together', and it's happening on 25-27 March in Birmingham. We'll feature more than 35 specialty groups, inspiring keynote speakers and practical workshops - so you can update your knowledge.
The state of digital child health todayIn this RCPCH Podcasts episode, Richard Burley, Executive Director of Digital talks with Professor Sam Shah about how digital technology can support child health, and how paediatricians can embrace it.
St David's Day Conference 2024Join us in Cardiff on 27 February. With the theme, ‘Shaping the future’ - the future of paediatricians and of children and young people - we'll be exploring leadership, education and healthcare innovation.
Data entry deadline - 9 January 2024
Health Boards and Trusts should submit data to the Cohort 5 clinical audit and the 2023 organisational audit by this deadline.
Published in July 2023, the most recent results from Epilepsy12 provide insight into epilepsy care of children and young people.
The report presents key findings, national recommendations, and quality improvement. You can also find regional or local results in the extended analyses and detailed data tables.
Frequent reporting dashboard
This is a new interactive tool to share Epilepsy12 performance indicator data in the public domain at more frequent intervals.
Our current round has two main data processing and reporting components: the organisational audit and the clinical audit. We provide full detail, and the link to submit data.
We've brought together the Epilepsy12 annual reports from earlier rounds, plus links to our patient and parent guide, clinic posters, presentations from our conferences and more.
Epilepsy12 and OPEN UK National Conference 2023
Our sixth annual Epilepsy12 and Organisation of Paediatric Epilepsy Networks (OPEN UK) National Conference took place on 27 September 2023, as a hybrid event. We had a series of engaging presentations and workshops, plus poster exhibitions and booths.
Epilepsy Quality Improvement Programme (EQIP)
In June 2019 we launched the first paediatric epilepsy QI collaborative pilot in England and Wales. RCPCH EQIP supports epilepsy service teams to identify sustainable improvements within their services for children and young people with epilepsy.
Epilepsy12 Youth Advocates
This group of epilepsy experienced or interested children, young people and families volunteers to improve care for patients and their families - such as a Clinic Chat Check List.