Established in 2009, Epilepsy12 has the continued aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies.
-
Membership
Grief we don’t speak ofWe need places to pause and acknowledge the emotional impact of caregiving, writes Dr Jess Morgan. We want to hear members' stories of overwhelm and burnout, and compassion too.
Milestones magazineIn our summer 2023 edition, we prepare for the new training currriculum Progress+! Members discuss collaborative working in youth-friendly services and so much more. -
Education and careers
We're getting ready for Progress+Live from August, Progress+ builds on the current curriculum, and will be flexible and fulfilling. Our FAQs, resources and updates outline what to expect. -
Work we do
Sharing paediatric and child health workforce informationWe provide a unique overview through our data collections, guidance, evidence library and interactive maps. -
Resources
Engaging children and young peopleOur guidance and best practice examples can help you collaborate with children, young people and their families to create a healthcare service that meets their needs.
Secure settingsAt any time, about 1,000 children and young people are placed in secure settings on justice or welfare grounds, and they may have complex needs. Our healthcare standards were refreshed in spring 2023. -
Key topics
Industrial action in the NHSWe recognise that taking strike action is a personal choice. We have published frequently asked questions to support members, including advice especially for trainees and SAS doctors.
Working for changeTwo years ago, we outlined the steps we need to take on equality, diversity and inclusion. We've now reported on our progress, and what happens next as we remain dedicated to working for change. -
News and events
Podcast on child health inequalitiesTwo innovative teams tell us about their work to better understand the impact of poverty on children and young people’s health, and design NHS services with targeted support.
Annual review2022 was a busy year where we sought to #ShiftTheDial on health inequalities, launched a new RCPCH Learning platform, led on policy work across the four nations and so much more.
Published in July 2022, the most recent results from Epilepsy12 provide insight into epilepsy care of children and young people. The report presents key findings, quality improvement and national recommendations, with full analyses and regional or local results in appendices and detailed data tables.
An updated version of this report has been published in November 2022.
Our current round has two main data processing and reporting components: the organisational audit and the clinical audit. We provide full detail, and the link to submit data.
We've brought together the Epilepsy12 annual reports from earlier rounds, plus links to our patient and parent guide, clinic posters, presentations from our conferences and more.
Epilepsy Quality Improvement Programme (EQIP)
In June 2019 we launched the first paediatric epilepsy QI collaborative pilot in England and Wales. RCPCH EQIP supports epilepsy service teams to identify sustainable improvements within their services for children and young people with epilepsy.
Epilepsy12 Youth Advocates
This group of epilepsy experienced or interested children, young people and families volunteers to improve care for patients and their families - such as a Clinic Chat Check List.