There are two main data processing and reporting components: the organisational audit and the clinical audit. See our methodology and datasets, and how to submit your data.
Submit your data for cohort 8
We invite Health Boards and Trusts to submit their clinical data for cohort 8 on our Epilepsy12 data platform. This cohort is for patients with a first paediatric assessment for a paroxysmal episode(s) between 1 December 2024 and 30 November 2025, and first year of care data entry between 1 December 2025 and 30 November 2026.
Published in July 2026, our annual report presents the latest results from Epilepsy12, with three key themes: including all children and young people; workforce and pathways for local populations; and impactful care planning.
Its cover features a collaborative artwork by the Youth Epilepsy Warriors.
How data is managed, protected and used, including privacy statements, data protection impact assessments and detailed notes on data analysis, cleaning and validation.
Get timely information on the performance of your paediatric epilepsy service by exploring our interactive dashboard. It's updated monthly with data on the audit's key performance indicators.
Our eighth annual conference, with Organisation of Paediatric Epilepsy Networks (OPEN UK), took place last September. Catch up on the presentations, such as medicine adherence and the evolving role of epilepsy specialist nurses.
We've brought together the Epilepsy12 annual reports from earlier rounds, plus links to our patient and parent guide, clinic posters, presentations from our conferences and more.
This group of epilepsy experienced or interested children, young people and families volunteers to improve care for patients and their families - such as a Clinic Chat Check List.