British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Going from start to finish icon - for guideline
SInce 1985 we have facilitated research on over 100 rare conditions, and have immensely influenced decisions about these diseases and the impact on patients.
If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete our form.

Sir Peter Tizard research bursary

Applications are now open until 16 October for this bursary. The successful applicant receives a free slot on the BPSU Orange Card and a stipend towards their training needs.

BPSU annual report 2018-19 cover featuring image by Annabelle, age 11 showing star and people in hospital and 'Rare and Me'

Our latest report - with cover art by 11-year old Annabelle - explains how the orange Ecard surveillance system works, gives the scientific coordinator’s yearly review of activities and includes updates on current BPSU studies...

Research news from the College