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British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

Studies currently on the eReporting card ('orange card')

Congenital and hospitalised neonatal varicella
ROHHAD (Rapid-onset obesity)
This month's reporting instructions for these studies
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Apply to the BPSU

We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Apply to the BPSU
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Impact of BPSU

SInce 1985 we have facilitated research on over 100 rare conditions, and have immensely influenced decisions about these diseases and the impact on patients.
About our impact
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Get eReporting cards

If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete our form.
Sign up
Search all BPSU current studies

Other BPSU content

Past studies
Surveillance of HIV infection and vertical HIV exposure
Patient and public involvement
Research using health records
BPSU privacy notice
Bulletins
Rare disease tea party - reports from past events
Partnership Board
Scientific Committee
BPSU Sir Peter Tizard research bursary
Annual reports
Other research activities at RCPCH

Research news from the College

More news
Professor Steve Turner, RCPCH President
President's update
6 October 2025

Navigating the future of paediatrics – President's update

In his latest update, Professor Steve Turner reflects on the pressing challenges facing child health, from rising child poverty to ongoing NHS pressures. He shares how RCPCH is advocating nationally, supporting the paediatric workforce, and working with partners to improve outcomes for children and ...