British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Going from start to finish icon - for guideline
SInce 1985 we have facilitated research on over 100 rare conditions, and have immensely influenced decisions about these diseases and the impact on patients.
If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete our form.

Our latest annual report

The BPSU 2020-21 annual report explains how the orange eCard surveillance system works, has a yearly review of activities from the BPSU chair and includes updates on current BPSU studies - and much more.

Research news from the College


Dr Andrew McArdle wins the Lorber Award 2022

During the COVID-19 pandemic, rapid evidence in its treatment of children and young people was crucial, and Dr McArdle's research in this area became of international importance.

Dr Seilesh Kadambari wins the 2022 Simon Newell Award

Each year, with support from GOSH Charity and Sparks, we offer this prestigious award of £2,000 to one early independent researcher in paediatrics. We speak with this year's winner about his research to improve the lifelong health of preterm babies, plus his tips for aspiring researchers.