British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.

Announcement

1 July 2026

BPSU publishes first five-year report showcasing the impact of rare disease surveillance

The British Paediatric Surveillance Unit (BPSU)’s report brings together the Unit's achievements between 2021 and 2025 and demonstrates how national surveillance of rare childhood conditions is improving research, informing policy and supporting clinical care across the UK and Republic of Ireland.

Media response

25 June 2026

RCPCH and BAPM response to Independent Review of Maternity Services at Nottingham University Hospitals NHS Trust

On 24 June 2026 the Ockenden report published the ‘findings, conclusions and essential actions to improve care and safety in maternity services across England’ following the independent review report of Maternity Services at Nottingham University Hospitals NHS Trust.

Dr Niamh Scally presents her abstract on RCPCH Conference 2026 stage

Announcement

23 June 2026

Announcing the winner of the 2026 Michael Blacow Memorial Prize

We are delighted to announce that Dr Niamh Scally won this year's Michael Blacow Memorial Prize for best paper presented during a plenary session at RCPCH Conference and as set by an open audience vote.

British Paediatric Surveillance Unit

Studies currently on the eReporting card ('orange card')

Five-year report

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Other BPSU content

Research news from the College

BPSU publishes first five-year report showcasing the impact of rare disease surveillance

RCPCH and BAPM response to Independent Review of Maternity Services at Nottingham University Hospitals NHS Trust

Announcing the winner of the 2026 Michael Blacow Memorial Prize