British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Going from start to finish icon - for guideline
SInce 1985 we have facilitated research on over 100 rare conditions, and have immensely influenced decisions about these diseases and the impact on patients.
If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete our form.

This report explores our activities, studies and engagement with patients, family and the public over the course of the Unit’s existence.

Research news from the College


Vice President election results announced

The RCPCH is pleased to announce the results of the recent Vice Presidential elections. Dr Simon Clark has been elected Vice President for Health Policy and Professor Nick Bishop has been elected Vice President for Science and Research. They will take up their posts on 6 March 2019. ​​​​​​​