British Paediatric Surveillance Unit

The BPSU is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
We welcome applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.
Going from start to finish icon - for guideline
SInce 1985 we have facilitated research on over 100 rare conditions, and have immensely influenced decisions about these diseases and the impact on patients.
If you are a consultant paediatrician or SAS doctor with your own case load working in the UK or Republic of Ireland, and do not already receive the BPSU eReporting cards, please complete our form.

Our latest annual report

The BPSU 2020-21 annual report explains how the orange eCard surveillance system works, has a yearly review of activities from the BPSU chair and includes updates on current BPSU studies - and much more.

Research news from the College

President's blog

Celebrating unsung heroes – President’s blog

In a tough week for the child health agenda in the UK, Camilla encourages us to continue to advocate on children's behalf. She also shares her gratitude for the efforts of some of our overseas partners and our subspecialty groups.