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National Paediatric Diabetes Audit (NPDA) - transparency and open data

Audits team
This page provides access to NPDA transparency and governance resources, including NPDA privacy statements, NPDA data protection impact assessments, the RCPCH data protection policy and detailed notes on data analysis, cleaning and validation. These documents set out how NPDA data is managed, protected and used, ensuring openness and accountability in the audit process.
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Privacy

The NPDA has section 251 approval to collect patient-identifiable data without explicit patient consent. This data is processed and reported by the NPDA team at RCPCH, with HQIP (Healthcare Quality Improvement Partnership) and NHS England as the joint data controllers.

You can read our privacy statements online:

You can also download the NPDA data protection impact assessment below, showing compliance with General Data Protection Regulation (GDPR) and UK data protection legislation.

Data flows within the audit

Download our NPDA data flow process below

Opting out of the NPDA

If you are a child or young person with diabetes, or the parent/carer of a child or young person with diabetes, you can opt out by asking your paediatric diabetes team not to submit your data to the NPDA.

If you live in Jersey, you can email the clinical audit team at HSSClinicalAuditDepartment@health.gov.je.

You can also inform the NPDA team directly at npda@rcpch.ac.uk. 

Trust quality account information

The information below may be used to support Trusts in England for their Trust Quality Account submission.

2023-24 audit

  • Audit period - 1 April 2023 - 31 March 2024
  • Data collection end date - 24 May 2024
  • Participation - 100% of paediatric diabetes units (PDUs) in England and Wales
  • Coverage - 100% of all patients attending each PDU
  • Number of patients entered - Please contact the clinical lead at the service - we cannot release numbers until after publication.
  • National report publication date - March 2025

2024-25 audit

  • Audit period - 1 April 2024 - 31 March 2025
  • Data collection end date - 25 April 2025
  • Participation - TBC
  • Coverage - TBC
  • Number of patients entered - Please contact the clinical lead at the service - we cannot release numbers until after publication.
  • National report publication date - March 2026

Webinar on reporting

In February 2024 NPDA Manager Holly Robinson and NPDA Analyst Cillian Brophy hosted this webinar and Q&A to explain the processes involved in cleaning, analysing and reporting the core NPDA dataset, including upcoming plans for quarterly reporting and provision of data for hybrid closed loop reimbursement.