Research

Resource

Epilepsy Passport evaluation (2018)

Two years after its launch, we carried out an evaluation to understand how healthcare professionals, children and young people and their families use the Epilepsy Passport. This tells us which aspects of the Passport have been successful and which need improvement.
Basic page

BPSU - Annual reports

The British Paediatric Surveillance Unit (BPSU) has published its first Five-Year Report, bringing together the Unit's achievements and impact between 2021 and 2025. The report showcases how national surveillance of rare childhood conditions has informed research, policy and clinical care across the...