BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year. 

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Privacy notice - BPSU

This privacy notice covers the personal data of the BPSU clinical respondents who contribute to the BPSU epidemiology system. This privacy notice does not cover the use of clinical data or the legal grounds for processing it. Privacy details on the clinical data collected by the study teams is a...