BPSU

The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year. 

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Neonatal stroke presenting/diagnosed in the first 90 days of life

Surveillance of neonatal stroke is to commence in autumn of 2021. The study is led by Tizard bursary winner Dr T’ng Kwok and will provide a current description of neonatal stroke including the associated factors, management and outcomes. By exploring how babies with neonatal stroke present and are c...
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BPSU study - Avoidant/Restrictive Food Intake Disorder (ARFID)

Surveillance of Avoidant/Restrictive Food Intake Disorder (ARFID) is due to commence in March 2021. In conjunction with parallel reporting through the Child and Adolescent Psychiatric Surveillance System, this study aims to establish incidence rates of ARFID presenting to secondary health care, refe...
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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)

Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...