BPSU

In this webinar, Professor Michael Beresford, Dr Hanna Lythgoe, Dr Eve Smith and Sammy Ainsworth present the key findings from the BPSU Juvenile-systemic lupus erythematosus (JSLE) study, provide an introduction to JSLE and discuss treatment strategies and the impact on patients and the role of LUPU...

The British Paediatric Surveillance Unit (BPSU) at RCPCH is pleased to announce that we are inviting applications for this bursary, which is open to paediatric trainees and newly qualified consultants wishing to undertake a research study into a rare disease or condition that affects children.

RCPCH responds to higher than usual rates of liver inflammation (hepatitis) in children. This page was updated on 11 May to reflect findings from the ongoing UKHSA investigation.

We've worked with the University of Dundee Health Informatics Centre on a new platform to collect data on rare diseases - making it easier for clinicians to report cases and complete their clinical questionnaires.

Over the last year, children, young people and families have been thinking about rare diseases and what matters to them. To mark Rare Disease Day 2022, the RCPCH Engagement Committee has pulled together views and thoughts in this letter.