BPSU
The British Paediatric Surveillance Unit is a world leading centre for rare paediatric disease surveillance. It enables doctors and researchers to investigate how many children in the UK and Republic of Ireland are affected by particular rare diseases, conditions or treatments each year.
News
BPSU will be seeking a new Chair for its Scientific Committee
18 January 2021
In June, Dr Shamez Ladhani will step down as Chair of British Paediatric Surveillance Unit's Scientific Committee after three years in the post, and we'll start recruitment for a new Chair from 29 January.
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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...
News
Applications now open for Sir Peter Tizard research bursary 2020-21
13 July 2020
The British Paediatric Surveillance Unit and RCPCH once again invite applications for this bursary from early career paediatricians wishing to undertake an epidemiological study of a rare disease or condition. Winners are awarded a free slot on the BPSU 'Orange eCard' reporting scheme and a stipend ...
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BPSU study - Multisystem inflammatory syndrome, Kawasaki disease and toxic shock syndrome
Surveillance of multisystem inflammatory syndrome has now commenced. Our aim is to understand the incidence, presenting features, laboratory features, management, clinical course and the outcome of this potentially new syndrome characterised by hyperinflammation which is temporally associated with C...
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BPSU 'snap-shot' survey - delayed presentations to hospitals
The COVID-19 pandemic led to concerns that children are, for various reasons, presenting late to emergency departments. This has led to delayed diagnosis and hence a delay in treatment. Such presentation delays are well known, but they appear to have increased during this pandemic. Unfortunately, th...
News
BPSU study to look at neonatal complications of COVID-19
1 April 2020
The British Paediatric Surveillance Unit has now started collecting data on neonatal complications of coronavirus disease (COVID-19) in the UK and Northern Ireland. This study is needed to understand the impact of Coronavirus infection in newborn babies and babies born to mothers with Coronavirus, s...
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COVID-19 - data collection
This guidance provides advice for paediatricians and health professionals on how to accurately collect and record data on patients with suspected or confirmed cases of COVID-19 using existing surveillance and data collection sources.
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BPSU study - Neonatal complications of coronavirus disease (COVID-19)
Surveillance of the neonatal complications of coronavirus disease (COVID-19) commenced in March 2020. The study aims to find out how many babies develop coronavirus infection in the first month after birth, and how many babies born to women with coronavirus need neonatal care; describe which babies ...
News
Surveillance of outcome of resuscitated term babies with no heart rate detected at 10 minutes of age starts next month
5 March 2020
This study, run through the British Paediatric Surveillance Unit (BPSU), will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age, describing the demographic characteristics, clinical features and initial management of ...
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BPSU study - Conservative care in end-stage kidney disease
This surveillance study commenced in September 2020. This study aims to identify children with ESKD who receive conservative care, to understand how the decision not to start renal replacement therapy is made and important factors that are considered in this decision-making process.