12 November 2018
This will study incidence, early management and outcomes of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
7 November 2018
The study aims to determine the incidence of FAS in the UK and Ireland, investigate which services are accessed by babies and children affected by the condition and raise awareness about FAS among clinical practitioners.
23 November 2018
A one-day conference sharing the latest research, innovation and quality improvement being undertaken at Great Ormond Street Hospital and the Great Ormond Street Institute of Child Health
Commencing in November 2018, this BPSU study will investigate the incidence, early management and outcomes at 12 months, of babies born with harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal morta...
13 December 2018
Hosted by Professor Helen Cross OBE, the Prince of Wales’s Chair for Childhood Epilepsy, this is the 10th Masterclass in this series. The Key Note Speech, given by Professor Alexis Arzimanoglou, Professor of Neurology and Child Neurology at College de Medecine des Hopitaux de Paris, precedes a three...
The first ever prospective surveillance of Sydenham's chorea in the UK and Ireland commenced in November 2018 and will run for two years. This study is being undertaken in collaboration with the Exeter Medical School and the Child and Adolescent Psychiatry Surveillance System. The study aims to exa...
20 August 2018
Shamez will take over from Dr Richard Reading in September. The BPSU office, study teams, and Scientific Committee extend their gratitude to Richard for his astute leadership over the past five years.
Surveillance of Fetal Alcohol Syndrome (FAS) commenced in October 2018. The study aims to determine the incidence of FAS in the UK and Ireland; investigate which services are accessed by babies and children affected by the condition; and raise awareness about FAS among clinical practitioners. Th...
09 November 2018
The aim of the symposium is to share the current research in neuromuscular diseases.
This privacy notice covers the personal data of the BPSU clinical respondents who contribute to the BPSU epidemiology system. This privacy notice does not cover the use of clinical data or the legal grounds for processing it. Privacy details on the clinical data collected by the study teams is a...