Rare disease

Course

Difficult Vascular Access in Children (DVAC) - course

01 August 2024

Nottingham

This is a fun, interactive course aiming to encourage vein-preserving and time-saving techniques to improve outcomes and satisfaction for patients and carers. Feedback from previous DVAC courses has said the course has positively changed people’s practice. The course has previously run in Belfast an...
Course

Point of Care Ultrasound – lung & lines, heart & brain (Hands on) - course

13 July 2024

Brighton

This Course will benefit Paediatric and Neonatal consultants & trainees, and advanced nurse practitioners, and researchers in the diagnostic use of ultrasound as per POCUS guidance. The course aims to deliver the essential theoretical knowledge and practical experience with helpful tips relevant to ...
News

Tribute to Gordon Herbert Denney, Hon. FRCPCH

Gordon Denney (1928-2024) had a distinguished career with the City of London Corporation and the Worshipful Company of Gardeners. In his retirement Gordon was the honorary administrator of the National Reye's Syndrome Foundation UK which provided support for research into this rare but devastating c...
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BPSU Study - Acute Hepatitis 22

BPSU surveillance of the Acute Hepatitis in Children 2022 commenced in May 2022 collecting cases seen from January 2022 onwards. This study aims to understand viral, non-viral or unidentified causes of this apparent increase in cases of acute hepatitis reported to the UKHSA. The study is being led b...
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BPSU study - Avoidant/Restrictive Food Intake Disorder (ARFID)

Surveillance of Avoidant/Restrictive Food Intake Disorder (ARFID) is due to commence in March 2021. In conjunction with parallel reporting through the Child and Adolescent Psychiatric Surveillance System, this study aims to establish incidence rates of ARFID presenting to secondary health care, refe...
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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)

Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...