Rare disease

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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)

Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...

Myotubular Trust - Project Grants

Funding projects that will help find a cure and / or a treatment for any form of centronuclear and myotubular myopathy (congenital X-linked recessive; congenital autosomal recessive; autosomal dominant), focusing on research that would not generally be funded by public or industrial funding sources.
Award programme/theme
Project grant
Funding amount range
£100,001 to £250,000
Maximum duration
2-3 years
Submission deadline
News

Surveillance of outcome of resuscitated term babies with no heart rate detected at 10 minutes of age starts next month

This study, run through the British Paediatric Surveillance Unit (BPSU), will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age, describing the demographic characteristics, clinical features and initial management of ...