Rare disease

Myotubular Trust - Project Grants

Funding projects that will help find a cure and / or a treatment for any form of centronuclear and myotubular myopathy (congenital X-linked recessive; congenital autosomal recessive; autosomal dominant), focusing on research that would not generally be funded by public or industrial funding sources.
Award programme/theme
Project grant
Funding amount range
£100,001 to £250,000
Maximum duration
2-3 years
Submission deadline
News

Surveillance of outcome of resuscitated term babies with no heart rate detected at 10 minutes of age starts next month

This study, run through the British Paediatric Surveillance Unit (BPSU), will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age, describing the demographic characteristics, clinical features and initial management of ...