18 January 2021
Behçet’s syndrome is a rare multi-system inflammatory condition characterised by recurrent oral ulceration, genital ulceration, eye and skin involvement. In this webinar, the panel of speakers will present the findings of the 2017 BPSU study.
BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...
Reye's Syndrome is a very rare disorder affecting children and young people, which can appear soon after a viral infection, especially a flu-like illness or chickenpox. The National Reye's Syndrome Foundation, which is now part of RCPCH, provides evidence-based information on a dedicated website.
13 July 2020
The British Paediatric Surveillance Unit and RCPCH once again invite applications for this bursary from early career paediatricians wishing to undertake an epidemiological study of a rare disease or condition. Winners are awarded a free slot on the BPSU 'Orange eCard' reporting scheme and a stipend ...
Most children and teenagers do not become seriously ill with COVID-19. But doctors have seen a very small number of patients with an unusual condition which seems to be linked to the virus. This syndrome is very rare, and most children will not be seriously affected. If you're worried, seek help...
19 May 2020
The Royal College of Paediatrics and Child Health (RCPCH) and Newlife the Charity for Disabled Children are pleased to announce their first joint clinical research fellowship award in childhood disability has been awarded to Dr Asma Soltani at the University of Cambridge. Dr Soltani will research Re...
Myotubular Trust - Project Grants
Funding projects that will help find a cure and / or a treatment for any form of centronuclear and myotubular myopathy (congenital X-linked recessive; congenital autosomal recessive; autosomal dominant), focusing on research that would not generally be funded by public or industrial funding sources.
Surveillance of multisystem inflammatory syndrome has now commenced. Our aim is to understand the incidence, presenting features, laboratory features, management, clinical course and the outcome of this potentially new syndrome characterised by hyperinflammation which is temporally associated with C...
Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 (PIMS) - guidance for clinicians
Most children are asymptomatic or exhibit mild symptoms from COVID-19 infection. However, a small number have been identified who develop a significant systemic inflammatory response, which is also known as PIMS-TS or PIMS). This document for clinicians, which has been developed after expert review ...
Surveillance of outcome of resuscitated term babies with no heart rate detected at 10 minutes of age starts next month
5 March 2020
This study, run through the British Paediatric Surveillance Unit (BPSU), will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age, describing the demographic characteristics, clinical features and initial management of ...