Rare disease

Volunteering opportunity

BPSU Scientific Committee - volunteering opportunities

Closing date
The British Paediatric Surveillance Unit (BPSU) was set up in 1986, to undertake active surveillance of paediatric conditions and infections across the UK and Ireland. Internationally known, it is a joint initiative between the RCPCH, Department of Health and Social Care (DHSC) and University Colleg...
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BPSU Study - Acute Hepatitis 22

BPSU surveillance of the Acute Hepatitis in Children 2022 commenced in May 2022 collecting cases seen from January 2022 onwards. This study aims to understand viral, non-viral or unidentified causes of this apparent increase in cases of acute hepatitis reported to the UKHSA. The study is being led b...
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BPSU study - Avoidant/Restrictive Food Intake Disorder (ARFID)

Surveillance of Avoidant/Restrictive Food Intake Disorder (ARFID) is due to commence in March 2021. In conjunction with parallel reporting through the Child and Adolescent Psychiatric Surveillance System, this study aims to establish incidence rates of ARFID presenting to secondary health care, refe...
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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)

Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...