19 May 2020
The Royal College of Paediatrics and Child Health (RCPCH) and Newlife the Charity for Disabled Children are pleased to announce their first joint clinical research fellowship award in childhood disability has been awarded to Dr Asma Soltani at the University of Cambridge. Dr Soltani will research Re...
Myotubular Trust - Project Grants
Funding projects that will help find a cure and / or a treatment for any form of centronuclear and myotubular myopathy (congenital X-linked recessive; congenital autosomal recessive; autosomal dominant), focusing on research that would not generally be funded by public or industrial funding sources.
Surveillance of multisystem inflammatory syndrome has now commenced. Our aim is to understand the incidence, presenting features, laboratory features, management, clinical course and the outcome of this potentially new syndrome characterised by hyperinflammation which is temporally associated with C...
Most children are asymptomatic or exhibit mild symptoms from COVID-19 infection. However, a small number have recently been identified who develop a significant systemic inflammatory response. This document for clinicians, which has been developed after expert review of the cases, includes a case de...
Versus Arthritis / Fight for Sight - PhD Studentship
Abstract applications are now invited for a PhD Studentship co funded by Fight for Sight to address arthritis and visual impairment. This includes, but is not limited to Bechet’s Syndrome, Giant cell arteritis and Sjögren's syndrome. Any research relevant to inflammation and uveitis are also welcomed. The proposed project must aim to stop or reduce sight loss.
Surveillance of outcome of resuscitated term babies with no heart rate detected at 10 minutes of age starts next month
5 March 2020
This study, run through the British Paediatric Surveillance Unit (BPSU), will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age, describing the demographic characteristics, clinical features and initial management of ...
This surveillance study is due to commence in April 2020. This study aims to identify children with ESKD who receive conservative care, to understand how the decision not to start renal replacement therapy is made and important factors that are considered in this decision-making process.
5 February 2020
Dr Mike Linney, Registrar and Chair of the Ethics Committee for RCPCH, welcomes recent guidance from NICE, but notes the urgent need for high quality, independent research on this medicine to provide the best possible care for children with complex epilepsy.
BPSU surveillance of outcome of symptomatic glucocorticoid induced adrenal suppression is due to commence in April 2020. This study will estimate how many people are presenting to healthcare providers with adrenal suppression causing symptoms because of them currently or previously taking glucocorti...
This surveillance study is due to commence in March 2020. This study will identify the incidence of term babies who receive resuscitation following birth and have no heart rate detected at 10 minutes of age: describe the demographic characteristics, clinical features and initial management of this p...