British Paediatric Surveillance Unit team

Formed in 1986, the BPSU is a activity supported by Public Health England, UCL Institute of Child Health and the Royal College of Paediatrics and Child Health.

The unit aims to:

facilitate research into uncommon childhood infections and disorders for the advancement of knowledge and to effect practical improvement in prevention, treatment and service planning
allow paediatricians to participate in surveillance of uncommon disorders and to lessen the burden on reporting doctors of such requests arising from numerous different sources
increase awareness within the medical profession and public of the less common disorders studied and respond rapidly to public health emergencies
collaborate with our link surveillance units in the UK and across the world.

Phone: +44 (0)20 7092 6173/74

Email: bpsu@rcpch.ac.uk

Recent content

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BPSU - Bulletins

The British Paediatric Surveillance Unit produces a regular newsletter to send to reporting clinicians and other interested parties.

BPSU

Basic page

BPSU - International activities

The BPSU is a founding member of the International Network of Paediatric Surveillance Units (INoPSU). INoPSU's mission is the advancement of knowledge of uncommon childhood infections and disorders and the participation of paediatricians in surveillance on a national and international basis.

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BPSU Sir Peter Tizard research bursary

Each year we invite trainee paediatricians and newly qualified consultants planning a surveillance study through the British Paediatric Surveillance Unit (BPSU) to apply for this bursary. The successful applicant receives a free slot on the BPSU Orange Card and a stipend towards their training needs...

BPSU

Rare disease

Fellowships, awards and prizes

Research

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BPSU impact - case studies

The BPSU has facilitated research into over 100 rare conditions. In many instances, the findings have had an immense influence over decisions relating to the condition and patient. Read case studies on the impact of BPSU's research below.

BPSU

Rare disease

Research

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BPSU reporting instructions

Download monthly reporting instructions for the British Paediatric Surveillance Unit - for each current study and previous months.

BPSU

Rare disease

Research

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BPSU - Past studies

Details of completed studies of the British Paediatric Surveillance Unit, listed alphabetically by condition.

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BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

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BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

BPSU

Conditions

Rare disease

Engaging children and young people

Children and young people's voice

Patient experience

Patient involvement

Research

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BPSU study - Behçet’s syndrome

Surveillance of Behçet’s syndrome in children and young people concluded in May 2017. The study team hope to ascertain the incidence and prevalence of Behçet’s syndrome in children and young people. They also hope to examine the clinical presentation and management of the syndrome. A paper has n...

BPSU

Rare disease

Research

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BPSU study - Pierre Robin Sequence

Surveillance of Pierre Robin Sequence in the UK and ROI concluded in January 2017. The study team is hoping to identify the birth prevalence of Pierre Robin Sequence, outline its clinical presentation, initial management and 12 month clinical outcomes. The study is being led by Dr Marie Wright, winn...