Conditions
Basic page
BPSU study - Congenital ichthyosis (SCIN)
Commencing in November 2018, this BPSU study will study incidence, early management and outcomes at 12 months, of babies born with Harlequin ichthyosis (HI) or collodion membrane (CM). These are rare genetic conditions characterised by thick, tight scaly skin and significant neonatal mortality.
Course
Great Ormond Street Hands-on Echo Course Part 1: Echo Assessment of Simple Congenital Heart Disease
10 November 2018
London
The workshops and presentations will focus on recognising and understanding basic paediatric echocardiography and morphology of the normal heart and hearts with simple lesions. This two-day programme is designed to take registrants from the basics of normal hearts and simple congenital heart disease...
News
Medicines for Children shortlisted for a 2018 HSJ Award
4 September 2018
Our medicines information resource for parents and children is shortlisted for the “Optimisation of Medicines Management” category of the Health Service Journal Award, which celebrates healthcare excellence.
News
Government to consult on banning the sale of energy drinks to children
29 August 2018
RCPCH President, Professor Russell Viner, responds to the announcement saying "the growing market for energy drinks and potential for harm to children and young people clearly warrants further scrutiny."
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Privacy notice - BPSU
This privacy notice covers the personal data of the BPSU clinical respondents who contribute to the BPSU epidemiology system. This privacy notice does not cover the use of clinical data or the legal grounds for processing it.
Privacy details on the clinical data collected by the study teams is a...
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BPSU - Annual reports
The BPSU produces a yearly annual report which reviews the surveillance undertaken for the previous year and provides information on upcoming studies.
You can view the most recent annual report (2016-17) below. BPSU annual reports for previous years can also be found in the downloads section of t...
News
RCPCH President responds to publication of Government's obesity plan
24 June 2018
The plan is "extremely encouraging" says Prof Viner but more supported is needed for children who are already overweight or obese.
News
Adverse effects of indoor air pollution on child health to be investigated in first ever UK review
19 June 2018
The potentially harmful impact of indoor air pollution on children is to be the subject of a major study for the first time in the UK.
Course
Progressing Paediatrics: Childhood epilepsies
27 November 2018
London
The epilepsies of childhood are an enigma. They are the most frequently over-diagnosed but paradoxically, also under-diagnosed group of paroxysmal neurological disorders.
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BPSU study - Congenital hypothyroidism
Surveillance of primary congenital hypothyroidism concluded its surveillance period in June 2012 with follow-up to June 2015. This UK study aims to determine how many babies and children up to and including five years of age are found each year to have congenital hypothyroidism, diagnosed either sub...