Conditions

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Privacy notice - BPSU

This privacy notice covers the personal data of the BPSU clinical respondents who contribute to the BPSU epidemiology system. This privacy notice does not cover the use of clinical data or the legal grounds for processing it. Privacy details on the clinical data collected by the study teams is a...
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BPSU study - Congenital hypothyroidism

Surveillance of primary congenital hypothyroidism concluded its surveillance period in June 2012 with follow-up to June 2015. This UK study aims to determine how many babies and children up to and including five years of age are found each year to have congenital hypothyroidism, diagnosed either sub...
BPSU
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Rare disease
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Committee

BPSU - Governance Board

The officers of the BPSU are responsible to the Scientific Committee, which in turn is accountable to the BPSU Governance Board. The Governance Board was established in 2014 and comprises representation from the three parent bodies of the BPSU, the RCPCH, Public Health England, and the UCL GOS Insti...
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BPSU - International activities

The BPSU is a founding member of the International Network of Paediatric Surveillance Units (INoPSU). INoPSU's mission is the advancement of knowledge of uncommon childhood infections and disorders and the participation of paediatricians in surveillance on a national and international basis.
BPSU
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