Patient experience
Event
2019 Epilepsy12/OPEN UK National Conference
17 June 2019
Registration is now open for the 2019 Epilepsy12 & Organisation of Paediatric Epilepsy Networks in the UK (OPEN UK) National Conference – “Working together to improve epilepsies’.
Document
RCPCH Progress - domain of the month: Communication
Effective communication is a vital skill for any paediatrician, be that with colleagues, children and young people, parents and carers or other care professionals. This is one of a series of resources - developed with and by trainees, supervisors and children and young people - to support trainees i...
Resource
QI Central – sharing QI experience and expertise
Our free resource, launched in March 2019, brings together examples of quality improvement (QI) interventions submitted by child health professionals. It also has useful tools to aid data collection and improvement interventions.
Resource
Hidden health - a parent-led card and toolkit now being piloted
Parents from Alder Hey Children’s Hospital worked with RCPCH &Us to look at three elements of being “hidden”: children and young people with a hidden condition or illness; hidden family carers providing support; hidden support services such as forums. Their #HiddenHealth #ThisIsMe card and toolkit a...
Resource
Epilepsy12 &Us - voices from the RCPCH &Us network
Children and young people told us about their experiences of epilepsy care in our "clinic chats" - how they want to get in touch with services, the kind of support they want to receive, their best experiences and their ideas for the future. We worked with our Epilepsy12 Youth Advocates to produce a ...
Basic page
NPDA - capturing the experiences of patients and parents
The National Paediatric Diabetes Audit is running Parent and Patient Reported Experience Measure (PREM) surveys to gain an understanding of parents’ and patients’ perspectives and experiences of the care they have that they have received in the previous six months.
Basic page
Winter pressures - views from children, young people and families
"What does the term, 'winter pressures' mean to you?" We put this question to children, young people and families. Here are some of their comments.
Resource
Epilepsy12 & OPEN UK National Conference 2018 resources
On 22 June 2018, more than 140 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the inaugural Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children an...
Document
How does PaedCCF outpatients work? A step-by-step guide
As a paediatrician, how well do you listen to parents, carers and children? The Paediatric Carers of Children Feedback (PaedCCF) tool helps you measure how well you interact with these groups during outpatients consultations, and to identify any areas that may need attention. You will need to get at...
Resource
Understand 101 tool - RCPCH &Us
The 'Understand' model is designed for healthcare professionals to think about the why, how and what every time they work with children and young people.