Patient experience

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The UK Paediatric Epilepsy Programme Board is looking for Experts by Experience

Having seen the incredible benefit that Experts by Experience bring, the UK Paediatric Epilepsy Programme Board has agreed to expand and we are excited to announce we now have seven opportunities for new Experts by Experience to join the board. Deadline for applications: Midnight, 15 August 2023.

Epilepsy

Participation

Children and young people's voice

Patient experience

News

Epilepsy12 Youth Advocates awarded the Patient and Public Involvement Hero Award by HQIP

20 June 2023

On 20 June 2023, the Epilepsy12 Youth Advocates were announced as joint winners of the Patient and Public Involvement Hero Award by the Healthcare Quality Improvement Partnership (HQIP). The award is one of five Clinical Audit Heroes Awards that are announced during the 2023 Clinical Audit Awareness...

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Healthcare standards for children and young people in secure settings

There are about 1,000 children and young people placed in secure settings at any one time on justice or welfare grounds. This cohort of children often have complex needs that span mental health, neurodevelopmental need, substance misuse, and physical health, which can be hard to reach through tradit...

Looked after children

Service design

News

A young person’s experience of living with epilepsy

24 March 2023

In this first of a podcast series from the Medicines for Children team, we speak with Fiona, a young person with epilepsy, and her mum, Karen. It's an honest and lively discussion from their fear at first diagnosis to working out the right medication, to learning to live well with the condition.

Resource

Engaging children and young people - improving communication

We have collated a number of resources and RCPCH &Us project work which gives you practical tools and advice on how healthcare professionals can improve their communication with children, young people and their families. Much of this content has been created with children and young people and includ...

Participation

Children and young people's voice

Patient experience

Patient involvement

News

Child health inequalities - talking with families

19 December 2022

Children living in poverty are more likely to experience poorer health outcomes, and paediatricians are in a unique position to advocate for lifelong change in their patients. In this podcast, three doctors talk about how to make such conversations with families approachable and meaningful.

News

The Epilepsy12 Youth Advocates have been awarded the Richard Driscoll Memorial Award

17 November 2022

On 17th November 2022, the Epilepsy 12 Youth Advocates were announced as the winners for the Richard Driscoll Memorial Award for outstanding patient involvement in clinical audit at the annual Healthcare Quality Improvement Partnership (HQIP) AGM.

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NI Executive Children and Young People’s Strategy 3 Year Delivery Plan - consultation response

In 2021 the Department of Education published the overarching 10 Year Children and Young People’s Strategy (2020 – 2030) on behalf of the NI Executive. Subsequently, in 2022, the Executive produced an initial draft three Year Delivery Plan (2021-24) and published for public consultation.

Health policy

Participation

Children and young people's voice

Wellbeing for children and young people

Quality improvement

Society

Poverty

News

Response to the NHS Race and Health Observatory report

14 February 2022

On Monday, 14 February 2022, the NHS Race and Health Observatory published a rapid review of ethnic inequalities in healthcare and within the NHS workforce.

News

The PERFORM project wins the PIER award

10 May 2021

With support from NIHR, we have run the Paediatric Involvement and Engagement in Research (PIER) award for the second year now to recognise multi-disciplinary teams that involve and engage children and young people in their research. Here, we speak with the winning team about their project.