This programme ran for five years until March 2023.
Our Impact report 2022 highlights the impact this programme had on paediatric diabetes units across England and Wales from 2018 to early 2023. Our Self-assessment report 2018-2022 evaluates the units' compliance against more than 150 measures.
The RCPCH Diabetes Quality Programme team were notified that the below are examples of good resources. Sharing these examples does not equate to formal RCPCH endorsement.
Deapp aims to deliver the full primary Type 1 Diabetes curriculum at diagnosis via a structured education course using a flipped learning approach, whereby the patient learns about Type 1 Diabetes via a virtual learning environment (a purpose built app) which is then supplemented by education sessions with members of the multi-disciplinary team to ascertain the knowledge of patients though play. For more information, contact firstname.lastname@example.org.
DigiBete is a video platform and social enterprise which seeks to support children, young people and families self manage their diabetes by providing access to resources online.
Goals of diabetes is a structured education programme providing an overview of facts that young people should understand as they journey from diagnosis through to transitioning from paediatric to adult diabetes services.
The SEREN structured education programme (Structured Education Reassuring Empowering Nurturing) for children and young people with Type 1 diabetes, from diagnosis through to adult services, has been developed by a multidisciplinary working group within Wales with input from parent representatives and is hosted by the National Children and Young People's Network in Wales. It is delivered through face-to-face sessions. The first module “Diabetes at diagnosis” uses workbooks for each of the educational Key Stages alongside a family workbook and together with four further group modules, are supported by module specific curricula and resources and delivered by trained educators. The "Diabetes at diagnosis" module has been formally evaluated and is the first paediatric structured education resource in the UK to be successfully accredited by the Quality Institute of Self-Management Education and Training in August 2020. Quality assurance and ongoing review of resources are an integral part of SEREN. For further information, contact Seren.Diabetes@wales.nhs.uk.
RCPCH &Us is the voice of children, young people, parents and carers, created to actively seek and share their views to influence and shape policy and practice. See resources for working with children, young people and families
Ensuring high quality care for young people as they move from children's to adult's health services is crucial. See our listing of health transition resources.
The RCPCH Facing the Future - standards for ongoing health needs provides a vision of how paediatric care can be delivered to provide a high quality service to children and young people with ongoing health needs.