What makes a paediatric palliative medicine (PPM) paediatrician?
A paediatric palliative medicine (PPM) doctor has expertise working with neonates, infants, children and young people with life-limiting conditions and life-threatening illness, and their families. These conditions include malignancy; inherited disorders; cardiac, neurological and neuromuscular diseases; and a variety of rare progressive and irreversible conditions.
PPM doctors work alongside multidisciplinary teams (MDTs) across hospital, hospice and community settings, providing a total approach to care and focusing on quality of life. The approach embraces physical, emotional, social and spiritual elements. These consultants provide:
- specialist symptom management (eg nausea, pain, breathlessness, and agitation)
- guidance on advance care planning (eg the preferred place of care, and ceilings of care)
- guidance on end-of-life and bereavement care
- support with complex ethical decisions (eg feeding and hydration).
The PPM doctor also plays a vital role in supporting other healthcare professionals to care for children with life-limiting conditions.
Revised syllabus
We spoke with clinicians working in this sub-specialty, and agreed some enhancements to the sub-specialty syllabus. The revised version is approved by the General Medical Council (GMC) for use as of August/September 2021. Download the revised syllabus below
Dr Jonathan Downie, Consultant in Paediatric Palliative Care, introduces the revisions to this sub-specialty's syllabus.
A summary of the changes:
- Learning Outcome (LO) 3 has been updated by adding the statement ‘considering their impact on physical, psychological and emotional health’.
- LO5 has also been updated by removing the statement ‘ensures good practice and provides appropriate support and guidance in decision-making and advance care planning’ and instead adding it as a new Key Capability (KC).
- LO8, KCs have been split into three separate KCs, and LO9 KCs have been split into two separate KCs.
- The Assessment Grid has been updated with changes made to the KCs.
You can find out more about the updates to this and other sub-specialty syllabi. If you have any questions contact us on qualityandstandards@rcpch.ac.uk.