Epilepsy | RCPCH

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Epilepsy12 transparency and open data

This page provides access to the Epilepsy12 audit's transparency and governance resources, including privacy statements, data protection impact assessments, the RCPCH data protection policy and detailed notes on data analysis, cleaning and validation. These documents set out how Epilepsy12 data is m...

Epilepsy

Data

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Epilepsy12 previous reports

The Epilepsy12 national audit has collected data on the diagnosis and care of children and young people with epilepsy in England and Wales since 2009, and our first report was published in 2012. You can download all annual reports from this page.

Epilepsy

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Epilepsy12 and OPEN UK national conference resources

Each year, Epilepsy12 and OPEN UK host an annual conference to bring together experienced healthcare professionals and discuss improving paediatric epilepsy care. The conferences have been a mix of virtual and face-to-face events, and have presented a mix of workshops and symposia aimed at health pr...

Neurology

Epilepsy

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Epilepsy12 - National Organisational Audit and Clinical Audit 2026

Published in July 2026, our annual report presents the latest results from Epilepsy12, providing insight into the diagnosis and care of children and young people with epilepsy and the organisation of paediatric epilepsy services in England and Wales. The report has three key themes: including all ch...

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Engaging children and young people in epilepsy services - audience and influence

Here are examples of how your service can build the feedback and suggestions from children, young people and families into your service planning and delivery - and keep them updated.

Epilepsy

Engaging children and young people

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Engaging children and young people in epilepsy services - space and voice

These resources offer varied ways to get feedback from children and young people about your service. Use the activities in existing clinic time or host specific events.

Epilepsy

Engaging children and young people

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Engaging children and young people in epilepsy services - about this project

Welcome to our resources for increasing the impact and influence of children, young people and their families’ voices - and to create a listening culture - in your paediatric epilepsy service. We want the views of children, young people and their families about their own care, and for service improv...

Epilepsy

Engaging children and young people

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Engaging children and young people in epilepsy services - how to get started

Getting new projects or initiatives off the ground can be daunting, especially in between running clinical services. This section has ideas, tips and experiences from epilepsy services to help get you started on your engagement journey.

Epilepsy

Engaging children and young people

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Engaging children and young people in epilepsy services - communication cards

Children, young people and families have created these easy-to-use and fun cards to help you facilitate children and young people’s voice in their care and your epilepsy service. They discussion starters on feelings, health topics and conversation prompts as well as a worksheet on communication pref...

Epilepsy

Engaging children and young people

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Engaging children and young people in epilepsy services - the Lundy model

Listening, understanding and actively engaging with the views, experiences and voice of children, young people and their families within your service brings many benefits. This section introduces the Lundy model, which sets out four criteria that are vital to participation: voice, space, audience an...

Epilepsy

Engaging children and young people