Children and young people told us about their experiences of epilepsy care in our "clinic chats" - how they want to get in touch with services, the kind of support they want to receive, their best experiences and their ideas for the future. We worked with our Epilepsy12 Youth Advocates to produce a ...
This report is the first formal output of Round 3 of the Epilepsy12 audit. It describes the organisation of paediatric epilepsy services for children and young people in England and Wales, as at April 2018. You can download the full report at the bottom of this page, as well as detailed results ...
28 June 2019
This study day will help you develop an approach for the management of epilepsy.
This information bundle on epilepsy presents interventions to ensure that children and young people with epilepsy receive high quality care and appropriate mental health support. This information was presented to NHS England to inform the development of their long term plan.
On 22 June 2018, more than 140 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the inaugural Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children an...
The Royal College of Paediatrics and Child Health and British Paediatric Neurology Association has developed this Q&A in light of recent developments in this area. It advises on the legality and safety of cannabis-based products and considers the evidence base for their potential harms and benefits.
27 July 2018
RCPCH Registrar, Dr Mike Linney, says the decision will 'come as a relief for some'. He warns parents in the meantime to not give children unlicensed cannabinoid oil products.
24 July 2018
Read about the National Paediatric Diabetes Audit, RCPCH Progress - the new paediatric curriculum, standards for emergency care and much more...
Two years following its launch, we carried out an evaluation to understand how healthcare professionals, children and young people and their families use the Epilepsy Passport. This tells us what aspects of the Epilepsy Passport have been successful and which areas need improvement.
Surveillance of deaths in children and young people with epilepsy (excluding Scotland) commenced in October 2016. The study team are hoping to determine the size of the problem of deaths in children affected by epilepsy, to compare the differences between sudden unexplained death in epilepsy (SUDEP)...