Epilepsy | RCPCH

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Epilepsy12 Youth Advocates

This is a group of epilepsy experienced or interested children, young people and families who volunteer together to improve care for epilepsy patients and their families. Read more about their award-winning project, the Clinic Chat Check List, and see how you can get involved!

Event

Epilepsy12 & OPEN UK National Conference 2021

14 September 2021

We are hosting our fourth annual Epilepsy12 & Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference as a live interactive event, with the theme, 'Working together to improve epilepsies'. Registration closed on Monday at 10:00.

Continuing professional development

Children and young people voice

Quality improvement

Resource

Epilepsy12 - national organisational audit and clinical audit - 2021

Epilepsy is the commonest significant neurological disorder affecting children and young people. Published in July 2021, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy services i...

Children and young people voice

Public health

Wellbeing for children and young people

Quality improvement

Resource

Antiepileptic drugs: review of safety of use during pregnancy

Following the known harms of valproate in pregnancy, MHRA released a report looking into the safety data for epilepsy medicines during pregnancy.

News

Updated guidance on valproate use in women and girls of childbearing years is published

14 December 2020

This guidance, updated in December 2020 and endorsed by RCPCH, has been produced to inform all healthcare professionals of best practice around the use and prescribing of valproate. It supports them to navigate situations that could arise as a result of prescribing valproate to women during childbea...

News

Thirteen UK healthcare bodies launch ‘pragmatic’ guidance on valproate use

14 December 2020

Experts from 13 national bodies, including seven Royal Colleges, have joined forces to launch new practical guidance to support doctors and other health professionals around valproate use in women and girls in their reproductive years.

News

Young people win a national award for epilepsy quality improvement

27 November 2020

The Epilepsy12 Youth Advocates have been selected as joint winners in the HQIP Audit Heroes Awards 2020 in the Volunteer of the Year Category, recognising their hard work to support improvements in epilepsy care.

Resource

Epilepsy12 & OPEN UK National Conference 2020 resources

On 10 September 2020, we hosted our third annual Epilepsy12 & Organisation of Paediatric Epilepsy Networks (OPEN UK) national conference 2020: 'Working together to improve epilepsies’, as a live webinar. Access resources and presentations from the event on this page.

News

Epilepsy12 - pedal with purpose!

30 September 2020

Dr Colin Dunkley, Consultant Paediatrician and Clinical Lead for Epilepsy12 tells us about the recent report on the clinical and organisational aspects of epilepsies care for children and young people in England and Wales.

Document

Epilepsy12 - national organisational audit and clinical audit - 2019

Epilepsy is the commonest significant neurological disorder affecting children and young people. Launched in September 2020, these latest results from Epilepsy12 provide insight into the diagnosis and care of children and young people with epilepsy, and the organisation of paediatric epilepsy servic...

Community child health

General paediatrics

Neurology

Epilepsy