Epilepsy

News

RCPCH responds to draft NICE guidance and outcome of NHS England review on CBMPs

13 August 2019

Last week, NICE published draft recommendations on the use of cannabis-based medicinal products (CBMPs) following evaluation of their clinical and cost-effectiveness, and NHS England published a review aimed at assessing the barriers to prescribing cannabis-based medicinal products where it is safe ...

Document

Medicinal cannabis for children and young people - briefing (updated February 2020)

The law in the UK was changed in November 2018 to make prescribing of medical cannabis legal, but parents have been struggling to secure prescriptions. For parents whose children have a condition for which they feel medicinal cannabis is helping, not having the medicine readily available is incredib...

Drugs and medicines

Epilepsy

Basic page

RCPCH EQIP - Epilepsy Quality Improvement Programme

The RCPCH Epilepsy Quality Improvement Programme (EQIP) ran from June 2019 to 2024 as the first paediatric epilepsy QI collaborative in England and Wales. It supported epilepsy service teams in England and Wales to identify and implement sustainable improvements within their services for children an...

Engaging children and young people

Quality improvement

Document

Paediatric neurology - training guide 2019

In 2018 the GMC (General Medical Council) approved a new syllabus for paediatric training, RCPCH Progress. This guide has been developed to help trainees achieve and evidence the specialty learning objectives (SLO) and key capabilities (KC) set out in the level 3 paediatric neurology syllabus.

Neurology

Epilepsy

News

Thirteen UK healthcare bodies launch ‘pragmatic’ guidance on valproate use

29 March 2019

Experts from 13 national bodies, including seven Royal Colleges, have joined forces to launch new practical guidance to support doctors and other health professionals around valproate use in women and girls in their reproductive years.

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Health transition resources

This page provides guidance and resources for delivering an effective transition from children's to adults' health services. We highlight five key determinants that ensure young people are provided with high quality care throughout the transition process.

Learning disability or learning difficulty

Adolescent health

Transition to adult

Resource

Epilepsy12 &Us - voices from the RCPCH &Us network

Children and young people told us about their experiences of epilepsy care in our "clinic chats" - how they want to get in touch with services, the kind of support they want to receive, their best experiences and their ideas for the future. We worked with our Epilepsy12 Youth Advocates to produce a ...

Engaging children and young people

Children and young people's voice

RCPCH &Us

Patient experience

Resource

Epilepsy12 National Organisational Audit Report 2018

This is the first formal output of Round 3 of the Epilepsy12 audit. It describes the organisation of paediatric epilepsy services for children and young people in England and Wales, as at April 2018. It shows improvements in some areas, including numbers of epilepsy nurse specialists and paediatrici...

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The case for investing in children and young people's epilepsy services

This information bundle on epilepsy presents interventions to ensure that children and young people with epilepsy receive high quality care and appropriate mental health support. This information was presented to NHS England to inform the development of their long term plan.

Resource

Epilepsy12 & OPEN UK National Conference 2018 resources

On 22 June 2018, more than 140 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the inaugural Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children an...

Children and young people's voice

Patient experience

Quality improvement