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Epilepsy12 audit governance and delivery
There are a number of governance systems in place to ensure the smooth delivery of the Epilepsy12 audit. Further information can be found below.
Epilepsy
News
The Epilepsy12 Youth Advocates have been awarded the Richard Driscoll Memorial Award 2022
17 November 2022
On 17 November 2022, the Epilepsy12 Youth Advocates were announced as the winners for the Richard Driscoll Memorial Award for outstanding patient involvement in clinical audit at the annual Healthcare Quality Improvement Partnership (HQIP) AGM.
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Useful epilepsy resources for children, young people and families
This page links to useful resources from the College and other charities to support your or your child's epilepsy care.
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Epilepsy12 methodology and data submission
The current round four of Epilepsy12 comprises two main data processing and reporting components: organisational audit and clinical audit. This page provides details on the methodology and data submission process for both.
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Administration of rectal diazepam to neonates and infants to treat seizures prior to hospital admission - position statement
This guidance is for ambulance services which need to administer diazepam, a medicine for treating seizures, to neonates and infants. It explains how to accurately administer a 1.25mg or 2.5mg dose directly from a 5mg rectal tube.
Buccal midazolam is usually preferred to rectal diazepam in the ho...
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Epilepsy12 patient and parent guide
Epilepsy12 is a national audit aiming to improve the quality of care for children and young people with epilepsies in the UK. The patient & parent guides and young person & parent leaflet describe key messages and information from the audit and are useful resources for patients and parents. The Epil...
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Epilepsy12 Youth Advocates
This is a group of epilepsy experienced or interested children, young people and families who volunteer together to improve care for epilepsy patients and their families. Read about their award-winning project, the Clinic Chat Check List, and their experiences and tips on developing a school care pl...
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Antiepileptic drugs: review of safety of use during pregnancy
Following the known harms of valproate in pregnancy, MHRA released a report looking into the safety data for epilepsy medicines during pregnancy.
News
Updated guidance on valproate use in women and girls of childbearing years is published
14 December 2020
This guidance, updated in December 2020 and endorsed by RCPCH, has been produced to inform all healthcare professionals of best practice around the use and prescribing of valproate. It supports them to navigate situations that could arise as a result of prescribing valproate to women during childbea...
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Young people win a national award for epilepsy quality improvement
27 November 2020
The Epilepsy12 Youth Advocates have been selected as joint winners in the HQIP Audit Heroes Awards 2020 in the Volunteer of the Year Category, recognising their hard work to support improvements in epilepsy care.