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Epilepsy12 audit

We work to improve the quality of care for children and young people with seizures and epilepsies.

National organisational audit

Our new report describes the organisation of paediatric epilepsy services in England and Wales as of April 2018. It shows incremental improvements in some areas, but a need for change in others.

We also worked with Epilepsy12 Youth Advocates to capture children and young people's experiences of epilepsy care - from the support they want to their ideas for the future.

Read our organisational audit report
Read our Epilepsy &Us report

About the audit

Established in 2009, Epilepsy12 has the continued aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies.
More about the audit

Data submission

Round 3 is underway, and involves an organisational audit and clinical audit phase. Find out about the timeframe for each phase and how to use the data platform.
About data submission

Methodology and governance

Round 3 looks at the organisation of paediatric epilepsy services, epilepsy care provided to children and young people and patient reported experience measures.
About methodology

Epilepsy12 & OPEN UK National Conference 2019

On 17 June 2019, more than 160 health professionals came together with the aim of improving the care offered to patients.

Access presentations and posters from the day
About OPEN UK (Organisation of Paediatric Epilepsy Networks in the UK)

You may also be interested in...

Epilepsy12 national reports from 2009-2014
Epilepsy passport - an essential, up-to-date record of a child's epilepsy
The case for investing in epilepsy services - our submission to NHS England
Our 2013 report on mortality and morbidity in children with epilepsy
Paediatric neurology sub-specialty
Guidance on valproate use