
OPEN UK aims to unite children's regional and national epilepsy networks to improve integrated care for children and young people with epilepsies, and has representation from all regional epilepsy networks.
It also aims to:
- encourage collaboration and sharing of regional and national ideas, pilots, and resources
- be a national resource and professional UK body to which other organisations may come for information, support, data and strategic or clinical input
- facilitate links to local, regional and national funding bodies.
The current chair of the OPEN UK Working Group is Dr Richard Brown.
You can download the terms of reference below.
Participating Health Boards/Trusts in the Epilepsy12 audit
The Epilepsy12 audit aims to help services measure and improve the quality of care for children and young people with seizures and epilepsies.
OPEN UK regional leads have helped the Epilepsy12 project team to formally register Health Boards/Trusts and EEG departments to participate in the third round of the audit. You can see the participating units in the map below.
OPEN UK Working Group membership
OPEN UK Network | Network Name |
Network Lead(s) |
EQIP Advisory Group |
---|---|---|---|
BPEG |
British Paediatric Epilepsy Group |
Suresh Pujar |
- |
BRPNF |
Birmingham Regional Paediatric Neurology Forum |
Ramiah Ramalakshmi |
Vacant post |
CEWT |
Maria Moran |
Rachael Wheway |
|
EPEN |
Pooja Harijan |
Carolyn McAskill, Jill Conium |
|
EPIC |
Mersey and North Wales Network 'Epilepsy in Childhood' Interest Group |
Neisha Dunbar-Creasey Jim Pauling |
Laura Neely |
NI | Northern Ireland |
Lesley-Ann Funston Clare Loughran |
- |
NTPEN |
Amit Bali |
Emma Hassan |
|
NWEIG |
North West Children and Young People's Epilepsy Interest Group |
Dan Hindley |
Amanda Hirst |
ORENG |
Oxford Region Epilepsy Interest Group |
Mario Sa |
Alison Mollett |
PENNEC | Paediatric Epilepsy Network for the North East and Cumbria |
Anita Devlin Ramesh Kumar |
Ian Webster |
SETPEG |
Elaine Hughes |
Amanda Tomalin |
|
SPEN |
Andreas Brunklaus |
- |
|
SWEP |
South Wales Epilepsy Forum |
Cathy White |
Vacant post |
SWIPE |
Andrew Lux |
Debbie Dean |
|
SWTPEG |
South West Thames Paediatric Epilepsy Group |
Tim Kerr |
Vacant post |
TEN |
Trent Epilepsy Network |
TBC |
Vacant post |
WPNN |
Wessex Paediatric Neurosciences Network |
Andrea Whitney |
Sharon Seton |
YPEN | Yorkshire Paediatric Epilepsy Network |
Fraser Scott |
Vacant post |