OPEN UK (Organisation of Paediatric Epilepsy Networks in the UK)

OPEN UK is a clinical network connecting NHS Health Boards and Trusts that provide care for children with epilepsies with regional epilepsy networks and a UK Working Group.
OPEN UK: Organisation of Paediatric Epilepsy Networks in the UK (logo)

OPEN UK aims to unite children's regional and national epilepsy networks to improve integrated care for children and young people with epilepsies, and has representation from all regional epilepsy networks.

It also aims to:

  • encourage collaboration and sharing of regional and national ideas, pilots, and resources
  • be a national resource and professional UK body to which other organisations may come for information, support, data and strategic or clinical input
  • facilitate links to local, regional and national funding bodies.

The current chair of the OPEN UK Working Group is Dr Richard Brown.

You can download the terms of reference below.

Participating Health Boards/Trusts in the Epilepsy12 audit

The Epilepsy12 audit aims to help services measure and improve the quality of care for children and young people with seizures and epilepsies.

OPEN UK regional leads have helped the Epilepsy12 project team to formally register Health Boards/Trusts and EEG departments to participate in the third round of the audit. You can see the participating units in the map below.

OPEN UK Working Group membership

OPEN UK Network Network Name

Network Lead(s)

EQIP Advisory Group

BPEG

British Paediatric Epilepsy Group

Sarah Aylett

-

BRPNF

Birmingham Regional Paediatric Neurology Forum

Ramiah Ramalakshmi 

Vacant post

CEWT

Children's Epilepsy Workstream in Trent

Maria Moran

Rachael Wheway

EPEN

Eastern Paediatric Epilepsy Network

Pooja Harijan

Carolyn McAskill,  Jill Conium

EPIC

Mersey and North Wales Network 'Epilepsy in Childhood' Interest Group

Neisha Dunbar-Creasey

Jim Pauling

Laura Neely

NI Northern Ireland

Lesley-Ann Funston

Clare Loughran

-

NTPEN

North Thames Paediatric Epilepsy Network

Amit Bali

Emma Hassan

NWEIG

North West Children and Young People's Epilepsy Interest Group

Dan Hindley

Amanda Hirst

ORENG

Oxford Region Epilepsy Interest Group

Geetha Anand

Alison Mollett

PENNEC Paediatric Epilepsy Network for the North East and Cumbria

Anita Devlin

Ramesh Kumar

Ian Webster

SETPEG

South East Thames Paediatric Epilepsy Group

Elaine Hughes

Amanda Tomalin

SPEN

Scottish Paediatric Epilepsy Network

Andreas Brunklaus

-

SWEP

South Wales Epilepsy Forum

Cathy White

Vacant post

SWIPE

South West Interest Group Paediatric Epilepsy

Andrew Lux

Debbie Dean

SWTPEG

South West Thames Paediatric Epilepsy Group

Tim Kerr

Vacant post

TEN

Trent Epilepsy Network

Hassan Al-Moasseb

Vacant post

WPNN

Wessex Paediatric Neurosciences Network

Andrea Whitney

Vacant post

YPEN Yorkshire Paediatric Epilepsy Network

Fraser Scott

Christine Bennett
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