OPEN UK (Organisation of Paediatric Epilepsy Networks in the UK)

OPEN UK is a clinical network connecting NHS Health Boards and Trusts that provide care for children with epilepsies with regional epilepsy networks and a UK Working Group.
OPEN UK: Organisation of Paediatric Epilepsy Networks in the UK (logo)

OPEN UK aims to unite children's regional and national epilepsy networks to improve integrated care for children and young people with epilepsies, and has representation from all regional epilepsy networks.

It also aims to:

  • encourage collaboration and sharing of regional and national ideas, pilots, and resources
  • be a national resource and professional UK body to which other organisations may come for information, support, data and strategic or clinical input
  • facilitate links to local, regional and national funding bodies.

The current chair of the OPEN UK Working Group is Dr Richard Brown.

You can download the terms of reference below.

Participating Health Boards/Trusts in the Epilepsy12 audit

The Epilepsy12 audit aims to help services measure and improve the quality of care for children and young people with seizures and epilepsies.

OPEN UK regional leads have helped the Epilepsy12 project team to formally register Health Boards/Trusts and EEG departments to participate in the third round of the audit. You can see the participating units in the map below.

OPEN UK Working Group membership

OPEN UK Network Network Name Network Lead(s) EQUIP Advisory Group
BPEG British Paediatric Epilepsy Group Ailsa McLellan Vacant post
BRPNF Birmingham Regional Paediatric Neurology Forum Ramiah Ramalakshmi  Vacant post
CEWT Children's Epilepsy Workstream in Trent Maria Moran Rachael Wheway
EPEN Eastern Paediatric Epilepsy Network Sreeni Tekki-Rao

Carolyn McAskill,  Jill Conium, Sharon Daniels

EPIC Mersey and North Wales Network 'Epilepsy in Childhood' Interest Group Rachel Mulholland Laura Neely
NTPEN North Thames Paediatric Epilepsy Network Amit Bali Emma Hassan
NWEIG North West Children and Young People's Epilepsy Interest Group Dan Hindley Amanda Hirst
ORENG Oxford Region Epilepsy Interest Group Geetha Anand Alison Mollett
PENNEC Paediatric Epilepsy Network for the North East and Cumbria

Anita Devlin

Ramesh Kumar

Ian Webster
SETPEG South East Thames Paediatric Epilepsy Group Elaine Hughes Amanda Tomalin
SPEN Scottish Paediatric Epilepsy Network Andreas Brunklaus -
SWEP South Wales Epilepsy Forum Cathy White Vacant post
SWIPE South West Interest Group Paediatric Epilepsy Andrew Lux Debbie Dean
SWTPEG South West Thames Paediatric Epilepsy Group Tim Kerr Vacant post
TEN Trent Epilepsy Network Hassan Al-Moasseb Vacant post
WPNN Wessex Paediatric Neurosciences Network Andrea Whitney Vacant post
YPEN Yorkshire Paediatric Epilepsy Network

Fraser Scott

Christine Bennett