OPEN UK aims to unite children's regional and national epilepsy networks to improve integrated care for children and young people with epilepsies, and has representation from all regional epilepsy networks.
It also aims to:
- encourage collaboration and sharing of regional and national ideas, pilots, and resources
- be a national resource and professional UK body to which other organisations may come for information, support, data and strategic or clinical input
- facilitate links to local, regional and national funding bodies.
The current chair of the OPEN UK Working Group is Dr Richard Brown.
You can download the terms of reference below.
Participating Health Boards/Trusts in the Epilepsy12 audit
The Epilepsy12 audit aims to help services measure and improve the quality of care for children and young people with seizures and epilepsies.
OPEN UK regional leads have helped the Epilepsy12 project team to formally register Health Boards/Trusts and EEG departments to participate in the third round of the audit. You can see the participating units in the map below.
OPEN UK Working Group membership
| OPEN UK Network | Network Name | Network Lead(s) | EQUIP Advisory Group |
|---|---|---|---|
| BPEG | British Paediatric Epilepsy Group | Ailsa McLellan | Vacant post |
| BRPNF | Birmingham Regional Paediatric Neurology Forum | Ramiah Ramalakshmi | Vacant post |
| CEWT | Children's Epilepsy Workstream in Trent | Maria Moran | Rachael Wheway |
| EPEN | Eastern Paediatric Epilepsy Network | Sreeni Tekki-Rao |
Carolyn McAskill, Jill Conium, Sharon Daniels |
| EPIC | Mersey and North Wales Network 'Epilepsy in Childhood' Interest Group | Rachel Mulholland | Laura Neely |
| NTPEN | North Thames Paediatric Epilepsy Network | Kerry Robinson | Emma Hassan |
| NWEIG | North West Children and Young People's Epilepsy Interest Group | Dan Hindley | Amanda Hirst |
| ORENG | Oxford Region Epilepsy Interest Group | Geetha Anand | Alison Mollett |
| PENNEC | Paediatric Epilepsy Network for the North East and Cumbria |
Anita Devlin Ramesh Kumar |
Ian Webster |
| SETPEG | South East Thames Paediatric Epilepsy Group | Elaine Hughes | Amanda Tomalin |
| SPEN | Scottish Paediatric Epilepsy Network | Kamath Tallur | - |
| SWEP | South Wales Epilepsy Forum | Cathy White | Vacant post |
| SWIPE | South West Interest Group Paediatric Epilepsy | Andrew Lux | Debbie Dean |
| SWTPEG | South West Thames Paediatric Epilepsy Group | Tim Kerr | Vacant post |
| TEN | Trent Epilepsy Network | Hassan Al-Moasseb | Vacant post |
| WPNN | Wessex Paediatric Neurosciences Network | Andrea Whitney | Vacant post |
| YPEN | Yorkshire Paediatric Epilepsy Network |
Fraser Scott |
Christine Bennett |