Why use the Passport?
We want to help children and young people with epilepsy and their families communicate with healthcare and other professionals, and to help health professionals communicate with each other.
You can use your Passport if or when you or your child need emergency health services - it helps avoid unnecessary delays. You can also use it to share information with your school or care services.
How do you use the Passport?
Paediatricians, paediatric neurologists and specialist epilepsy nurses fill in the Passport at epilepsy clinic appointments. It's saved locally for future updates.
The child or young person with epilepsy, or their parent or carer, gets a printed copy. You should carry this at all times, ready to present to healthcare professionals as and when needed.
How was it developed?
We developed the Epilepsy Passport following one of the key recommendations from our Child Health Review into Epilepsy (RCPCH, 2013).
We had input from key epilepsy professionals, parents, children and young people. The Healthcare Quality Improvement Partnership (HQIP) funded its development.
Two years after the launch, we carried out an evaluation to understand how healthcare professionals, children and young people and their families use the Passport, and to inform which aspects have been successful and which need improvement.
If you have any feedback or a general enquiry about the Epilepsy Passport, please use this form to contact us or email firstname.lastname@example.org.
Children, young people, parents and carers - How can we make the Epilepsy Passport better for you? Let us know how you have used the Passport, and if there's anything that would make it easier to use - get in touch on email@example.com.
Healthcare professionals - Do you have suggestions on how we can improve the Epilepsy Passport? We'd love to hear your feedback. Can you help promote it? You can download flyers and posters to display in your clinic, office or school.
Hospitals, charities and child health organisations - Can you help share the Epilepsy Passport? Please link to this page from your website.