Epilepsy Passport

This paper record gives essential up-to-date information about a child or young person’s epilepsy. This includes their emergency care plan, medication history and key professional contacts. You can download the passport below.

Download Epilepsy Passport

Why use the Passport?

Our aim is to help children and young people with epilepsy and their families communicate with healthcare and other professionals, and to help healthcare professionals communicate with each other.

Families can use the Passport when accessing emergency health services to ensure clear communication and avoid unnecessary delays.

They can also use it to share information with schools, residential or respite care services.

How do you use the Passport?

Paediatricians, paediatric neurologists and specialist epilepsy nurses fill in the Passport at epilepsy clinic appointments.

The Passport is saved locally for future updates.

The child or young person with epilepsy, or their parent or carer, gets a printed copy. They should carry this at all times, ready to present to healthcare professionals as and when needed. We have small plastic wallets to safely store the Passport - request one from your Epilepsy Clinic or contact us on epilepsy.passport@rcpch.ac.uk.

How was it developed?

We developed the Epilepsy Passport following one of the key recommendations from our Child Health Review into Epilepsy (RCPCH, 2013).

We had input from key epilepsy professionals, parents, children and young people. The Healthcare Quality Improvement Partnership (HQIP) funded its development.

Epilepsy Passport Evaluation

Two years following the launch, the RCPCH carried out an evaluation of the Epilepsy Passport to understand how healthcare professionals, children and young people  and their families use the Epilepsy Passport, and to inform what aspects of the Epilepsy Passport have been successful and which areas need improvement.

You can download the Epilepsy Passport Evaluation Report below.

Contact us

If you have any feedback or a general enquiry about the Epilepsy Passport, please use this form to contact us or email epilepsy.passport@rcpch.ac.uk.

Get involved

Children, young people, parents and carers

How can we make the Epilepsy Passport better for you? Let us know how you have used the Passport, and if there's anything that would make it easier to use - get in touch on epilepsy.passport@rcpch.ac.uk.

Healthcare professionals

Do you have suggestions on how we can improve the Epilepsy Passport? We'd love to hear your feedback.

Can you help promote it? You can download flyers and posters to display in your clinic, office or school.

Hospitals, charities and child health organisations

Can you help share the Epilepsy Passport? Please link to this page from your website.