Asthma &Me Ambassadors

This is a group of asthma experienced or interested children, young people and families who volunteer together to improve care for asthma patients and their families. Read about their award-winning project and the young people involved!
Last modified
17 January 2023

Established in 2019, the Asthma &Me Ambassadors formed to support the National Asthma and COPD Audit Programme (NACAP), bringing their voices, experiences, hopes and wishes to life through youth-led project work and advocacy.

Logos: Royal College of Physicians | NACAP

Our journey

We joined together from all over the country. Some of us are personally affected by asthma, and others affected through people they know. We are on a mission to improve asthma care and services for children and young people. We've have collected voice from children, young people and families in their clinics across the UK and hope that as a group we can represent their voice in different settings and have the support of others to take action and implement the changes they say are needed.

It's every child’s right, article 24 of the United Nations on the Rights of the Child, to have the best possible health care and with your help we can achieve this.

In 2021 we were really proud to be part of the award winning team of volunteers who were given the HQIP Richard Driscoll Memorial Award for patient and public involvement.

Our volunteering so far

By listening to the voice of others and sharing our own experiences, we  identified inconsistencies of care for patients with asthma, including:

  • Returning to face-to-face appointments
  • The level of care that is offered at our GPs
  • Arriving at A&E if you have an attack and what happens
  • Knowledge, awareness and understanding of school staff and teachers.

We worked with NACAP to create new patient leaflets to help patients and families to know what happens when you go to A&E with an asthma attack, how to stay healthy, happy and well as well as hints and tips for asthma care. There are three leaflets depending on your age - and some have games and activities in them! These leaflets are now updated (Decemeber 22) and available to download below. 

We also did some mystery shopping. We looked at different organisations and the quality of asthma support offered to see how accessible this is and if truly an aid to young people and their asthma. We thought about what could be improved and some good examples of what to do (we loved CHAH's Instagram - read our review on page 26 of RCPCH Milestones for autumn 2022!).

Who are the Asthma &Me Ambassadors?


Hello, My name is Jamie, I’m 14 and a proud Scouser from Liverpool. I have been volunteering with RCPCH &Us for five years now, working on lots of different projects but working on the asthma audit to help improve and change the information children and young people receive about the NACAP priorities and the level of care they should expect to receive.

My favourite part is the kind people I am working alongside in the group but also the doctors and nurses that have supported us.


Hi there, I'm Max! I live in Nottingham and have asthma myself. I can play the drums and am learning the guitar (I'm not the best at the moment!).

I love helping out and volunteering with RCPCH &Us and it's great to get my voice heard and really make a difference.


Hi, I’m Shreya! I live in Oxford. I love playing netball even though I have asthma.

I got involved with RCPCH &Us about a year and a half ago and I absolutely love it because I get to make a difference to children and young people's experiences in hospitals.


Hi! I'm Toby, and I joined the RCPCH &Us group about a year-and-a-half ago after I participated in a survey about being a young person in the NHS. Everyone in the group was really friendly and welcoming to me, and we have managed to do some great work together to help other children and young people.

The thing I like the most about this group is being able to make real changes to the experience of children and young people, including a project we have worked on to improve awareness about asthma for those that are newly diagnosed.


My name is Noor and I first joined the NACAP panel because I am passionate about making change in asthma care to support young people and improving their experiences with this condition. I’ve learnt so many things from being in the asthma project, especially because I don’t have asthma myself. I’ve learnt lots about types of inhalers, the stigma about spacers, factors affecting the asthma of an individual and more!

Overall, being involved in audits, linking up with other great organisations and working with fellow young people is a truly amazing experience and I learn so much about asthma care in the NHS.


What asthma means to me: Asthma means having a constant worry in the back of my mind. Have I taken my medication, can I play this sport or do this activity? Am I going to be ok? Asthma means having to carry an inhaler wherever I go and is a constant reminder to my worries. Reoccurring appointments making sure I’m ok.

It’s changed my life for good and for bad. The good parts are the people I have met and the care I have received. Jack, 16


I’m involved to help influence positive changes to asthma care / services. This is furthered by first hand experiences and I have been part of the Asthma &Me Ambassador’s since the beginning. Asthma means to me, advocating for one’s own needs to be met, strength not only physically and mentally, thinking before you do anything, asking for help - giving and receiving it, and using mindfulness to try and claim control acceptance to your limitations. Demi, 17


Hi my name is Hamnah and I’m 14, I am part of the NACAP panel, I joined the panel to make a voice about asthma in small children and adults because i have asthma myself and I think it is important for young people to feel comfortable and not be restricted from their asthma. I have learnt so many things from NACAP and love learning new things from it. I am so happy I got to be apart of the asthma project to help young people and adults.

Join us

We would love for you to sign up to have your page reviewed so we can give you feedback. Just email and we'll get back to you as soon as possible.

When our leaflets are re-published on this page, please share in your clinics. They'll help your patients know what to do when they go to hospital with an asthma attack.

We're now designing a two-minute animation on audit priorities and the level of care children and young people should be receiving on arrival to hospital - keep an eye on this page to watch it when it is launched!

If you want to join as an Asthma &Me Ambassador, email to find out more.

Big thanks to the Asthma &Me Ambassadors Demi, Hamnah, Jack, Jamie, Max, Noor, Shreya and Toby for planning and writing this web page.