Epilepsy12 National Organisational Audit Report 2018

This report is the first formal output of Round 3 of the Epilepsy12 audit. It describes the organisation of paediatric epilepsy services for children and young people in England and Wales, as at April 2018.

You can download the full report at the bottom of this page, as well as detailed results by section and each participating NHS Health Board and Trust.

Epilepsy affects around 112,000 children and young people in the UK. The Epilepsy12 audit (the National Clinical Audit of Seizures and Epilepsies for Children and Young People), uses data collected from hospitals and clinics to support quality improvement in paediatric epilepsy services.

The Epilepsy12 2018 National Organisational Audit Report captures details of the organisation of paediatric epilepsy services for children and young people in England and Wales as described at April 2018. The results detailed in the report reflect data submitted by 148 Health Boards and Trusts with a paediatric epilepsy service across England and Wales.

As featured within the report, the Epilepsy12 audit supports the work of the Organisation of Paediatric Epilepsy Networks in the UK (OPEN UK). The Organisation of Paediatric Epilepsy Networks in the UK (OPEN UK) was established in 2015 with the aim of joining up Health Boards and Trusts into functioning regional paediatric epilepsy networks to encourage and stimulate quality improvement.

Key messages

The Epilepsy12 2018 National Organisational report shows incremental improvements in some areas of paediatric epilepsy service provision, including:

  • overall numbers of epilepsy nurse specialists
  • overall numbers of paediatricians with expertise, and
  • the number of specific clinics for children and young people with epilepsies.

However, there remains a considerable need for improvement in the following areas as highlighted in the recommendations within the report:

  • sufficient provision of defined general paediatricians with expertise in epilepsies to correctly diagnose epilepsy and  provide appropriate ongoing management for all children with epilepsy
  • sufficient provision of epilepsy specialist nurses to ensure ongoing input to all children with epilepsies
  • ensuring rescue medication training
  • ensuring epilepsy clinic capacity
  • fulfilling Best Practice Criteria
  • defining paediatric neurology referral pathways
  • facilitating local access to vagus nerve stimulation
  • co-locating mental health provision
  • improving ‘service contactability’.
Infographics showing that for Health Boards/Trusts in England and Wales (as at April 2018), 94.6% employed a consultant paediatrician with expertise in epilepsy, 77.7% had at least some Epilepsy Specialist Nurse provision within their paediatric service and 12.8% facilitate mental health provision within epilepsy clinics.

Individual Health Board/Trust and Regional Paediatric Epilepsy Network results

Full results for all 2018 Epilepsy12 Organisational Audit measures are now available to view each NHS Health Board and Trust that contributed data for this phase of the audit - see downloads below.

Individual Health Board/Trust results are also displayed alongside the aggregate results for each of the 15 participating OPEN UK Regional Paediatric Epilepsy Networks, and the overall results for England and Wales combined.

The front tab, 'Summary', allows you to choose to go directly to any of the ten sections of paediatric epilepsy care covered by the report, or to view all of the audit measures in a single worksheet.

Each worksheet can be filtered to view data for particular Health Boards/Trusts or Regional Networks for ease of comparison. The audit measures that relate to the national report key findings are highlighted in purple columns within the spreadsheet.