More than 170 health professionals working in support of paediatric epilepsy services and patient organisation representatives from across England and Wales came together virtually at the third Epilepsy12/OPEN UK National Conference.
They joined the conference with the joint aim of learning from each other and improving the care offered to children and young people with epilepsies.
The conference was chaired by Professor Finbar O'Callaghan, Professor of Paediatric Neuroscience at UCL, (Hon) Consultant Paediatric Neurologist and President of the British Paediatric Neurology Association (BPNA).
One of the conference aims was to amplify the voice of children and young people who live with epilepsies. This was achieved through the inclusion of an interactive symposium led by the Epilepsy12 Youth Advocates, which showcased the impact of their diligent and groundbreaking work in the face of COVID-19.
In addition, the conference had presentations on OPEN UK-led quality improvement activities, Epilepsy12 audit results from the 2020 combined national report and a quality improvement (QI) showcase session.
Presentations from the day
You can download slideshows of some below.
You can also view recordings of the following presentations - click on the link to watch on YouTube.
Chair's welcome and British Paediatric Neurology Association (BPNA) update on activities - Professor Finbar O'Callaghan, Professor of Paediatric Neuroscience at UCL, (Hon) Consultant Paediatric Neurologist, and BPNA President
Children and young people led symposium - Epilepsy12 Youth Advocates with Emma Sparrow and Emma Hosking, RCPCH Children and Young People's Engagement team
OPEN UK update: NHS long-term plan - Dr Richard Brown, Consultant Paediatrician, Cambridge University Hospitals NHS Trust, Chair of OPEN UK
Epilepsy12 results of the combined national audit 2020 - Dr Colin Dunkley, Epilepsy12 Clinical Lead, Consultant Paediatrician, Sherwood Forest NHS Trust
RCPCH Epilepsy Quality Improvement Programme (EQIP) presentation showcase - Dr Patricia O’Connor, Honorary Professor, University of Stirling in the Faculty of Healthcare Sciences and Sport, and Executive Director, QI Discovery
Establishing a Transition Service - Ms Louise Capeling, Children's Epilepsy Nurse Specialist, Aneurin Bevan University Health Board EQIP team
Quality and timely EEG recordings at Nottingham University Hospitals NHS Trust - Ms Helen Sneath, Trainee Consultant Scientist, Nottingham University Hospitals NHS Trust EQIP team
Improving the Paediatric Epilepsy Pathway - One Seizure at a Time - Dr Eve Bassett, Consultant Paediatrician with interest in Epilepsy & Neurology, Royal United Hospitals Bath NHS Foundation Trust EQIP team
Improving epilepsy information on electronic records including emergency health care plans becoming more easily accessible via an electronic record - Ms Ailsa Grassam, Epilepsy Specialist Nurse, York Teaching Hospitals NHS Foundation Trust EQIP team
RCPCH Epilepsy Quality Improvement Programme (EQIP) - How do we embed change - Dr Richard Brown, Consultant Paediatrician, Cambridge University Hospitals NHS Trust, Chair of OPEN UK
Chair's closing remarks - Professor Finbar O'Callaghan, Professor of Paediatric Neuroscience at UCL, (Hon) Consultant Paediatric Neurologist, and BPNA President
You can access our Epilepsy Quality Improvement Programme (EQIP) on our EQIP webpage.
What would you like to see at future conferences?
Please email the team with your ideas on topics that you would like presented or discussed at the next national conference on firstname.lastname@example.org.