Epilepsy12 & OPEN UK National Conference 2019 resources

On 17 June 2019, more than 160 health professionals working in support of paediatric epilepsy services and patient organisation representatives came together at the second Epilepsy12/OPEN UK National Conference with the aim of learning from each other and improving the care offered to children and young people with epilepsies. Watch our highlights video for a snapshot of the day and access posters and presentations from the conference, below.

The conference was chaired by Dr Sophia Varadkar and included a young people-led symposium, keynote speaker and related Q&A session, Epilepsy12 updates and a quality improvement (QI) showcase session with associated QI poster displays. The conference also marked the launch of the RCPCH Epilepsy Quality Improvement Programme (EQIP).

Feedback shows that 94% of delegates left the conference with ideas for improvement within their service. 99% of delegates who provided feedback said that they would be happy to attend future Epilepsy12/OPEN UK national conferences.

Scroll down to download the full schedule and posters displayed on the day.

Presentations from the conference

OPEN UK update: NHS Long Term Plan and launch of pilot QI programme RCPCH EQIP - Dr Richard Brown, Consultant Paediatrician, Cambridge University Hospitals NHS Trust, Chair of OPEN UK 

Epilepsy12 update - Dr Colin Dunkley, Epilepsy12 Clinical Lead, Consultant Paediatrician, Sherwood Forest NHS T

Keynote presentation: The elephant of medication adherence (download below) - Professor Martin Kirkpatrick, Consultant Paediatric Neurologist and Clinic Lead, North of Scotland Child Neurology Network

Introduction of home telemetry as an alternative to inpatient telemetry - Dr Sutapa Biswas, Consultant Neurophysiologist, Chelsea and Westminster Hospital NHS Foundation Trust

Audit of PREVENT compliance in sodium valproate prescribing for female patients - Dr Amy Barker, ST5 Paediatric Trainee, Peterborough City Hospital

Exploring the economic value of the Roald Dahl Sapphire Epilepsy Nurse Specialist at Sherwood Forest Hospitals NHS Trust - Ms Kirsten Johnson, Epilepsy Specialist Nurse, Sherwood Forest Hospitals NHS Trust

What would you like to see at future conferences?

Please email the team with your ideas on topics that you would like presented or discussed at the next national conference on epilepsy12@rcpch.ac.uk.