Submitting your data
COVID-19 update: Under new guidance from HQIP, all national clinical audit data collection is being suspended. Until the suspension is lifted, there is no longer any obligation for paediatric diabetes units to submit data to the NPDA.
Given that over 50% of services have already submitted a partial dataset for 2019-20, and that a proportion are still equipped to enter data, following discussion with the NPDA Project Board and Dataset and Methodology group, the data capture system will remain online. What is done with the data entered will depend on the quantity and completeness of what has been received, and the NPDA will take a view on this in due course.
The NPDA recognises that it will be months before services are able to perform health checks and record measurements for entry into the audit, however once it is possible there will be value in quantifying the impact of the suspension of usual care on local, regional and national HbA1c, and we will still be able to report prevalence and incidence of diabetes.
Data can now be added continuously throughout each audit year. Units will typically have up to two months following the end of each audit year to finalise their submissions for that year. Please see the table below for full details of our audit years and data submission periods:
|Audit year||Year start||Year end||Final date for data submission|
|2019-20||1 April 2019||31 March 2020||25 June 2020|
|2020-21||1 April 2020||31 March 2021||TBC|
We ask that units submit data from all patient visits during the audit year. Data relating to all children and young people with all types of diabetes under the care of a paediatrician within a paediatric diabetes unit should be included. Summary results are presented within the data completeness report (DCR) generated upon each submission.
For data submission, you will need to use our online data capture system. If you used this last year, you can use the same login details. If you have forgotten your password, you can reset this on the login page. Please see below for a list of downloadable submission resources and user guides.
National Data Opt Out process
From 30 September 2020 all healthcare providers in England will need to comply with the National Data Opt Out. Patient data entered into the NPDA is subject to the National Data Opt Out process. Each patient’s NHS number must be screened against the national opt out list at NHS Digital prior to any of their data being entered on the NPDA data capture system. Please check with your Trust's Information Governance team for the local arrangements by which the screen should take place.
We now have our "How to" webinar available on core audit data submission:
The latest user guides and troubleshooting tips for our online data capture system can also be downloaded below.
Also available is the core NPDA dataset collected since 1 April 2017; this replaces the dataset in use since 2012-13. It was revised following publication of new guidance issued by the National Institute for Health and Care Excellence (NG18) in 2015. The majority of data items remain unchanged, with a number of new items and some items having been amended in light of the new guidance (all can be downloaded below). This has recently been amended on 15 February 2019 to improve clarity for data items 28 and 41.
As the dataset changed, so has the CSV submission template, which must be used for the 2018-19 submission. This is the same as the template for the 2017-18 audit. Please ensure the format of your data matches the format specified in the dataset - for example, dates must be in the format DD/MM/YYYY (no other variation) and the column headings row must be retained. Ensure the CSV file name begins with your PZ code (eg “PZ001 Morriston") - you can download the PZ numbers list below.
GP practice codes
GP practice codes are updated quarterly by NHS Digital. The most up to date version of the GP practice codes can be found on their page, GP and GP practice related data.
Which centres are eligible to participate?
All paediatric diabetes units in England and Wales.
Poster to inform patients and families
Please download, print and display the NPDA clinic poster in your unit. This publicises the audit to children and young people using your service and their families, so they know how their data is being used.
Please contact the NPDA team: firstname.lastname@example.org