National Paediatric Diabetes Audit - transparency and open data

NPDA collects data from paediatric diabetes units from across England and Wales and reports annually. Please see below for information about the data collection process and analysis, our privacy statement, data protection impact assessment, and how you can access NPDA data for research.

Data flows within the audit

You can download our NPDA data flow process below.

Privacy statement

The NPDA has section 251 approval to collect patient identifiable data without explicit patient consent. This data is processed and reported by the NPDA team at RCPCH, with HQIP (Healthcare Quality Improvement Partnership) and NHS England as the joint data controllers.

HQIP may approve the sharing of pseudonymised NPDA data for the purpose of academic research if stringent data protection policies and arrangements can be demonstrated by requestees and the aims of the research are approved. NPDA data will also be linked to Hospital Episodes and Statistics data produced by NHS Digital and the Patient Episodes for Wales supplied by the NWIS in order for the audit to produce reports on diabetes-related hospitalisation of children and young people.

You can download our full privacy statement, and a version for young people below, as well as the NPDA data protection impact assessment, showing compliance with General Data Protection Regulation (GDPR) and UK data protection  legislation. 

Outlier management

The RCPCH has put together an outlier management policy for national clinical audit. The NPDA's outlier management policy closely follows the process set out in the RCPCH policy. You can download both NPDA and RCPCH outlier management policies below.

Data files and analysis

We have made the data files from each audit year of the NPDA available for you to download. These, along with the description files, are also available on data.gov.uk

You can download notes on data analysis and validation below.

Data access

If you are interested in accessing unpublished data from the NPDA, you can download our data access information below.

Trust quality account information

The information below may be used to support Trusts in England for their Trust Quality Account submission.

2019-20 audit 

  • Audit period - 1 April 2019 - 31 March 2020
  • Data collection end date - Under guidance from HQIP, due to the current COVID-19 pandemic, all mandatory national clinical audit data collection has been suspended. The NPDA data capture system is being kept open online for those who may still want to/have the capacity to submit. 
  • Expected participation - 100% of paediatric diabetes units (PDUs) in England and Wales*
  • Coverage - 100% of patients attending each PDU
  • Number of patients entered - Please contact the clinical lead at the service - we cannot release numbers until after publication. 
  • National report publication date - March 2021*

*May be affected due to COVID-19

2020-21 audit 

  • Audit period - 1 April 2020- 31 March 2021
  • Data collection end date - 31 May 2021
  • Participation - 100% of paediatric diabetes units (PDUs) in England and Wales
  • Coverage - 100% of all patients attending each PDU
  • Number of patients entered - Please contact the clinical lead at the service - we cannot release numbers until after publication. 
  • National report publication date - March 2022