Conditions

Basic page

BPSU - Patient and public involvement

The BPSU is committed to ensuring that patient and public involvement (PPI) is embedded in its work in every way possible. The unit works with investigators to encourage and support public and patient involvement in their research. The information provided here is designed to support, not replac...

BPSU

Conditions

Rare disease

Engaging children and young people

Children and young people's voice

Patient information

Patient involvement

Research

Resource

National Paediatric Diabetes Audit (NPDA) Hospital admissions and complications reports 2011-2020

The NPDA admission reports summarise acute emergency hospital admissions where the primary diagnosis is related to diabetes in children and young people cared for in Paediatric Diabetes Units (PDUs) in England and Wales.

Basic page

BPSU - Past studies

Details of completed studies of the British Paediatric Surveillance Unit, listed alphabetically by condition.

Document

BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...

BPSU

Conditions

Rare disease

Engaging children and young people

Children and young people's voice

Patient experience

Patient involvement

Research

Document

BPSU 'Orange Card' reporting scheme - applying to run a study

The British Paediatric Surveillance Unit (BPSU) welcomes applications from clinicians and researchers who wish to carry out national surveillance on rare childhood diseases.

News

‘Worrying’ inequalities gap highlighted in children’s emergency healthcare

24 December 2017

School-aged children from the poorest areas are two and a half times more likely to be admitted to hospital in an emergency for asthma than their counterparts in the richest areas, and this gap has grown substantially in a decade, new research reveals today.

News

RCPCH welcomes Welsh Government’s move to support pupils with medical conditions

9 October 2017

Wales took a large step forward this week to improving the support given to children with medical conditions during the school day, including diabetes and epilepsy.