Diabetes mellitus (Type 1 diabetes) is a condition where the amount of glucose in your blood is too high because the body cannot use it properly. It affects around two per 1,000 children in England and Wales (in 2018-19 there were just under 2,800 new cases).
The vast majority of children and young people (around 95%), have Type 1 diabetes, whereas only a small number (around 5%), have Type 2 diabetes or other rare forms of diabetes.
About our audit
The National Paediatric Diabetes Audit (NPDA) is commissioned by the Healthcare Quality Improvement Partnership (HQIP) and funded by NHS England and the Welsh Government.
The NPDA is performed annually in England and Wales. The clinic that you attend is asked to submit information about your child’s diabetes care. The sole aim is to provide information that leads to improved quality of care for children and young people affected by diabetes. With this information, the NPDA produces a report each year.
The below video, created by DigiBete, contains a summary for parents and carers of findings from our latest report (2018-19). It includes information on the care that your child with diabetes should receive.
You can download parent and carer summary booklets of our NPDA reports below, for the audit years 2013-14 to 2018-19.
We also send printed copies to all paediatric diabetes services in England and Wales to be made available in their waiting areas.
Our key conclusions from 2018-19
In 2020, the NPDA published a report on health check completion and outcomes based on data collected in the 2018-19 audit year. A report on the results of a Patient and Parent Reported Experience Measure (PREM) survey was also published, showing findings of experiences of care provided by paediatric diabetes clinics as reported by children and young people with diabetes and their parents or carers.
- an increase in the provision of most key health checks recommended for children and young people with diabetes since the previous audit year
- that national average HbA1c results fell from 64.0 mmol/mol to 61.5 mmol/mol between 2017-18 and 2018-19
- that use of insulin pumps and continuous glucose monitoring (CGM) devices is associated with better diabetes management outcomes, even after controlling for the characteristics of the children and young people with diabetes using them
- variation in outcomes between paediatric diabetes services
- that children and young people and parents and carers identified 'advice and information' received at their clinic most frequently in their PREM survey comments about what they found helpful about their clinic visits, and that most would recommend their clinic to friends and family if they had diabetes.
Parents and carers of children and young people with diabetes should:
- talk to their diabetes clinics about receiving and discussing the results of health checks, suitable for their age
- work with their diabetes team to achieve the best HbA1c level possible for their child by aiming for blood glucose levels within targets set by their clinic
- ensure that future PREM survey results are representative of patient experience by participating in future surveys.
Ongoing support for children and young people with diabetes is important. This should include psychological assessment and ongoing support, structured educational packages, and blood glucose target setting to reduce the risk of long term complications.
The National Children and Young People’s Diabetes Network has shown commitment to working together to improve the care and outcomes of children and young people, using the national network structures and the National Children and Young People’s Diabetes Quality Programme to support lasting and meaningful improvement.