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BPSU Rare disease tea party - reports from past events

Since 2014, we've invited stakeholders from across the rare disease community to this informal networking event. Young people speak about their experiences of living with a rare disease, and patient advocates, researchers and health professionals talk about working in the field. Read on for highligh...
BPSU
Conditions
Rare disease
Engaging children and young people
Children and young people's voice
Patient experience
Patient involvement
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"It is the best invention of the 20th century": what children value about the NHS

15 March 2018
We met with children and young people at community groups, schools and hospitals across the UK. They told us, "they are lifesavers" and that the NHS "helps people when they need it most". They also advised that "NHS staff have someone to look after them too". Take a look and share our 90-second vide...
News

RCPCH responds to CQC's Children and young people's inpatient and day case survey

26 November 2017
Responding to the CQC’s Children and young people’s inpatient and day case survey, Dr Mike Linney, Children and Young People’s Lead at the Royal College of Paediatrics and Child Health, said: