Patient experience

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National Paediatric Diabetes Audit (NPDA) - Diabetes at school PREM 2026

Data collection for this Patient Reported Experience Measure (PREM) is open as of 2 March. The PREM is a survey about the experiences of children and young people with diabetes in education settings, including nursery, school and home learning. The results from the PREM will help paediatric diabe...

Diabetes

Patient experience

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RCPCH Conference 2025 - RCPCH &Us posters

In 2025, the RCPCH Engagement Committee asked youth groups, forums, hospitals, community groups and those supported by paediatric services to share their examples of engaging with children, young people and families. We hope you enjoy the diverse range of posters showcased at the RCPCH Conference b...

Engaging children and young people

Children and young people's voice

News

Our voices: My condition &... going beyond the clinical

5 June 2024

RCPCH &Us Podcasts is created by young volunteers with RCPCH &Us and focuses on the vibrancy and multi-dimensional nature of children and young people. The episode highlights the need for healthcare and education professionals to see beyond children and young people’s conditions when working with th...

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The UK Paediatric Epilepsy Programme Board is looking for Experts by Experience

Having seen the incredible benefit that Experts by Experience bring, the UK Paediatric Epilepsy Programme Board has agreed to expand and we are excited to announce we now have seven opportunities for new Experts by Experience to join the board. Deadline for applications: Midnight, 15 August 2023.

Epilepsy

Engaging children and young people

Children and young people's voice

Patient experience

News

Epilepsy12 Youth Advocates awarded the Patient and Public Involvement Hero Award 2023 by HQIP

20 June 2023

On 20 June 2023, the Epilepsy12 Youth Advocates were announced as joint winners of the Patient and Public Involvement Hero Award by the Healthcare Quality Improvement Partnership (HQIP). The award is one of five Clinical Audit Heroes Awards that are announced during the 2023 Clinical Audit Awareness...

Resource

Healthcare standards for children and young people in secure settings

There are about 1,000 children and young people placed in secure settings at any one time on justice or welfare grounds. This cohort of children often have complex needs that span mental health, neurodevelopmental need, substance misuse, and physical health, which can be hard to reach through tradit...

Engaging children and young people

Looked after children

Service design

News

A young person’s experience of living with epilepsy

24 March 2023

In this first of a podcast series from the Medicines for Children team, we speak with Fiona, a young person with epilepsy, and her mum, Karen. It's an honest and lively discussion from their fear at first diagnosis to working out the right medication, to learning to live well with the condition.

Resource

Engaging children and young people - improving communication

We have collated a number of resources and RCPCH &Us project work which gives you practical tools and advice on how healthcare professionals can improve their communication with children, young people and their families. Much of this content has been created with children and young people and includ...

Engaging children and young people

Children and young people's voice

Patient experience

Patient involvement

News

Child health inequalities - talking with families

19 December 2022

Children living in poverty are more likely to experience poorer health outcomes, and paediatricians are in a unique position to advocate for lifelong change in their patients. In this podcast, three doctors talk about how to make such conversations with families approachable and meaningful.

News

The Epilepsy12 Youth Advocates have been awarded the Richard Driscoll Memorial Award 2022

17 November 2022

On 17 November 2022, the Epilepsy12 Youth Advocates were announced as the winners for the Richard Driscoll Memorial Award for outstanding patient involvement in clinical audit at the annual Healthcare Quality Improvement Partnership (HQIP) AGM.