You can find published reports and findings from NPDA PREMs below.
Diabetes at School PREM 2026
We invited children and young people with diabetes, and their parents and carers, to share their experiences of managing diabetes in education settings. Data collection closed on 1 September and we will publish a national report on the findings in April 2027.
Find out more about the Diabetes at School PREM
First Year of Care PREM 2024
This PREM assessed various aspects of children and young people's, and their parents’ and carers’, experiences of diabetes care within the first year of care.
The online surveys were available from July 2023 to January 2024. Children and young people receiving care from a paediatric diabetes team, and their parents and carers, with a diabetes duration of 6 to 18 months were invited to participate. We received 2,712 responses: 726 from children and young people and 1,986 from parents and carers.
- Key messages from the First Year of Care PREM 2024
- 15% of respondents were unsure if they or their child had DKA at diagnosis, while 44% reported DKA at diagnosis—significantly higher than the 23.3% reported in the NPDA 2022/23 Care and Outcomes Report (see past NPDA reports).
- Parents/carers and children and young people were happy with the age appropriateness of the clinic waiting area.
- 82% of parents and carers could always reach their diabetes team during core hours, and 71% have 24/7 access. Nearly all respondents received face-to-face support, with 85% of parents/carers and 60% of young people receiving phone support. Over half of parents/carers also received support via hospital, home, or school visits.
- Most parents and carers could see a diabetes doctor and specialist nurse at every visit, but access was lower for dietitians and psychologists. Access to a psychologist varied widely across regions.
- Nearly a quarter of respondents weren’t offered an insulin pump or hybrid closed loop but would like to use one. Additionally, 2.7% were not offered any glucose monitoring device, and 6.6% were not using one.
- The vast majority of parents and carers and children and young people felt that schools and colleges were kept well informed with information about diabetes.
- Almost all respondents (99%) reported positive relationships with their paediatric diabetes team.
- Diabetes care impacts parents’ employment, with 30% reducing hours and 11% leaving work. Only 29% were asked by the diabetes team about financial challenges affecting their child’s care.
- 64% of parents/carers reported weekly sleep disruptions due to stress about their child’s health, with those of younger children affected more frequently.
We published the findings in November 2024. While it is important to acknowledge the high levels of satisfaction with care reflected in the findings, our report also highlights areas for improvement in care following diagnosis, offering specific recommendations to commissioners, regional diabetes networks, and paediatric diabetes units (PDUs) to address variations in patient and parent experiences.
Download the First Year of Care PREM report, extended analysis report and appendices below
Download the 2024 PREM Integrated Care Board and Local Health Board report on our SharePoint site
See PREM quantitative data files
PREMs 2019 and 2021
We ran our first PREMS in 2019 and 2021, and you can download these reports below.
Contact
If you have any queries please contact the NPDA team on npda@rcpch.ac.uk.