NPDA - capturing the experiences of patients and parents

The National Paediatric Diabetes Audit is running Parent and Patient Reported Experience Measure (PREM) surveys to gain an understanding of parents’ and patients’ perspectives and experiences of the care they have that they have received in the previous six months.

What are the PREM surveys?

The PREM surveys enable patients and parents to provide structured feedback, to have their say in how their paediatric diabetes service can better meet their needs, as well as affirm and acknowledge good care. The results of the surveys will be used to identify local and national areas of achievement and areas where improvements need to be made.

There is a survey for children and young people with diabetes, and one for parents and carers. They are in English, Welsh, Polish, Urdu (Pakistani) and Punjabi (Indian) languages.

Start a survey

Who is eligible to complete a survey?

Any child or young person who has received care from a paediatric diabetes clinic in England or Wales within the past 6 months, or their parents or guardians. 

To find out more, please download an information sheet below.

How long will the PREM surveys run for?

The PREM surveys run from 1 February until 31 July 2019. This allows PDUs (paediatric diabetes unit) time to prepare and choose when suits their unit best for collecting responses.

Prize to be won!

Respondents who successfully complete a survey have the option to add their name into a prize draw - just follow the link at the end of the survey. Two winners - one a child or young person with diabetes, and one a parent or carer - will be selected at random to win a £50 Amazon eGift voucher.  

You can download the terms and conditions of entry below.

What are our unit response numbers?

The more responses you collect, the richer and more representative the data about your service will be. The minimum number of responses per unit needed to enable generation of a report is likely to be ten, with the Project Board making the final decision once all responses are in.

To help support units to monitor their data collection, you can now download a Microsoft Excel spreadsheet below with the response numbers from both surveys for your clinic. We are updating this at regular intervals during the data collection period.

Support resources

The following resources are available to support data collection for the PREM surveys:

  • Information sheet - provides all the information that paediatric diabetes teams or respondents will need to know about the PREM surveys
  • Unit response numbers spreadsheet - will help units monitor their efforts in data collection and will be updated regularly
  • Tips to maximise PREM survey response rates - success stories from teams who recieved good response rates in previous PREMs
  • Template communication to send to parents - to support units with engaging children and young people with diabetes and their parents to complete a PREM survey
  • PREM poster - can be printed for use within units. Parents/patients can scan the QR code on the poster to access the survey on their mobile phones.
  • Prize draw terms and conditions
  • PREM privacy information