BPSU studies

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BPSU study - Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)

Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the car...

Community child health

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BPSU study - Clinical characteristics of children with pneumococcal meningitis

BPSU surveillance of the clinical characteristics of children with pneumococcal meningitis is due to commence in January 2020. This study will estimate the incidence of childhood pneumococcal meningitis in the era of pneumococcal conjugate vaccines; describe symptoms and signs at presentation; descr...

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BPSU study - Complete and incomplete Kawasaki disease (KD)

Surveillance of complete and incomplete Kawasaki disease (KD) in British and Irish children concluded in February 2015. A paper has now been published in Archives of Disease in Childhood. A link to the abstract can be found below. In addition a webinar has now been produced outlining some of the...

BPSU

Rare disease

Research

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BPSU study - Congenital and Hospitalised Neonatal Varicella

BPSU surveillance of fetal varicella syndrome (FVS) and neonatal varicella is to commence with the June 2023 card. The study is conducted by the UKHSA and led by Dr Gayatri Amirthalingam, and will study how many babies have FVS or neonatal varicella, the features of the diseases, the treatments babi...

Neonatal medicine

BPSU

Public health

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BPSU study - Congenital hypothyroidism

Surveillance of primary congenital hypothyroidism concluded in June 2012 with follow-up to June 2015. This UK study explored how many babies and children up to and including five years of age were found each year to have congenital hypothyroidism. This included babies diagnosed after a positive newb...

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BPSU study - Congenital ichthyosis

This two year, prospective BPSU study investigates the incidence, early management and outcomes at 12 months, of babies born with harlequin ichthyosis (HI) or collodion membrane (CM) born between 1 November 2018 and 31 October 2020. These are rare genetic conditions characterised by thick, tight sca...

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BPSU study - Congenital Zika syndrome

Surveillance of congenital Zika syndrome in infants under and including six months of age in the UK and Ireland commenced in April 2016. This study aimed to identify all babies with microcephaly or neurological abnormalities born in the UK and Ireland to mothers who have travelled to countries with ...

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BPSU study - Conservative care in end-stage kidney disease

This surveillance study commenced in September 2020. This study aims to identify children with ESKD who receive conservative care, to understand how the decision not to start renal replacement therapy is made and important factors that are considered in this decision-making process.

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BPSU study - Deaths in children with epilepsy

Surveillance of deaths in children and young people with epilepsy (excluding Scotland) commenced in October 2016. The study team were hoping to determine the size of the problem of deaths in children affected by epilepsy, to compare the differences between sudden unexplained death in epilepsy (SUDEP...

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BPSU study - End-stage renal disease (ESRD)

Surveillance of end-stage renal disease in early infancy concluded in May 2012. The study group are yet to publish a paper.

BPSU

Rare disease

Research