BPSU studies

Basic page

BPSU study - PIND (Progressive Intellectual and Neurological Deterioration)

Surveillance of Progressive Intellectual and Neurological Deterioration (PIND) in Children (including Creutzfeldt-Jakob Disease) through the British Paediatric Surveillance Unit began in May 1997 with the main aim of determining whether or not a child has developed variant Creutzfeldt Jakob disease ...

Basic page

BPSU study - Raised blood lead levels

Surveillance of raised blood levels in children concluded its surveillance period in June 2012. A report was published in 2018, and a link to the document can be found below.

Basic page

BPSU study - Rapid-onset obesity with hypoventilation, hypothalamic dysfunction and autonomic dysregulation (ROHHAD)

Surveillance of Rapid-onset obesity with hypoventilation, hypothalamic dysfunction and autonomic dysregulation (ROHHAD) is to commence in November 2024 led by Dr Katherine Hawton. The study will help to estimate how many children have ROHHAD, understand more about the condition and how it is being m...

BPSU

Public health

Basic page

BPSU study - Severe chronic fatigue syndrome / myalgic encephalitis (CFS/ME)

This BPSU study will collect information on all young people aged between five and 16 years who receive a diagnosis of severe Chronic Fatigue Syndrome or Myalgic Encephalitis (CFS/ME). The study aims to explore how many young people across the UK and Ireland have severe CFS/ME, the length of time fr...

Community child health

Basic page

BPSU study - Severe complications of enterovirus or human parechovirus infection

This BPSU study investigates severe complications of enterovirus (EV) or human parechovirus (HPeV). It is intended to improve our knowledge of the age-specific incidence, clinical presentation and management, as well describe the survival and rates of long-term complications of severe EV/HPeV infect...

Cardiovascular

Child and adolescent mortality

Infectious diseases

Intensive care medicine

Basic page

BPSU study - Severe microcephaly (SSM-UKI)

Surveillance of severe microcephaly in the UK and Ireland commenced in October 2017. This study will find out how many UK babies are born with microcephaly each year and how seriously this affects their health and developmental outcomes, including problems with hearing and vision. It will provide a ...

Basic page

BPSU study - Surgical ligation of the patent ductus arteriosus (PDA)

Surveillance of surgical ligation of the patent ductus arteriosus in premature babies concluded its surveillance period in September 2013. The study was led by Dr Lleona Lee, winner of the Sir Peter Tizard Bursary 2008-09. A paper has now been published in BMC Pediatrics. Link to the abstract ca...

BPSU

Rare disease

Research

Basic page

BPSU study - Sydenham's chorea

The first ever prospective surveillance of Sydenham's chorea in the UK and Ireland commenced in November 2018 and will run for two years. This study is being undertaken in collaboration with the Exeter Medical School and the Child and Adolescent Psychiatry Surveillance System. The study aims to exa...

Basic page

BPSU study - Type 2 diabetes

Surveillance of type 2 diabetes in children and young people less than 17 years of age concluded in April 2016. This is a repeat of study from 2005 and the research team hope to identify the incidence of newly diagnosed type 2 diabetes in children and young people and understand how this has changed...