BPSU studies

Search or browse studies that are currently on the eReporting card or that have finished surveillance.

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BPSU study - Enterovirus and parechovirus meningitis

Surveillance of enterovirus and parechovirus meningitis in infants less than 90 days of age concluded in July 2015. The study team hope to understand the clinical burden of the condition. A paper has now been published in Archives of Disease in Childhood - see below link to the abstract.

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BPSU study - Fetal Alcohol Syndrome

Surveillance of Fetal Alcohol Syndrome (FAS) commenced in October 2018. The study aims to determine the incidence of FAS in the UK and Ireland; investigate which services are accessed by babies and children affected by the condition; and raise awareness about FAS among clinical practitioners. Th...

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BPSU study - Food protein induced enterocolitis syndrome (FPIES)

This BPSU study investigates food protein induced enterocolitis syndrome (FPIES), a rare delayed type of food allergy which leads to repeated vomiting and other gastrointestinal symptoms up to several hours after a problem food (or baby formula) is eaten. There is very limited data on FPIES in the U...

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BPSU study - Gender identity disorder

Surveillance of gender identity disorder concluded in May 2013. This study was a dual surveillance project collecting data both through the British Paediatric Surveillance Unit (BPSU) and the Child and Adolescent Psychiatric Surveillance System (CAPSS) at the Royal College of Psychiatrists. The stud...

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BPSU study - Glucocorticoid induced adrenal suppression

BPSU surveillance of outcome of symptomatic glucocorticoid induced adrenal suppression commenced in September 2020. This study will estimate how many people are presenting to healthcare providers with adrenal suppression causing symptoms because of them currently or previously taking glucocorticoid ...

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BPSU study - Glutaryl CoADehydrogenase Deficiency (GA1)

Surveillance of glutaric aciduria 1 concluded its surveillance period in July 2012. The study was led by Dr Beth Cheesebrough, winner of the Sir Peter Tizard Bursary 2007-08. The study group are yet to publish their findings.

Inherited metabolic medicine

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BPSU study - Group B streptococcal disease (GBS)

Surveillance of Group B streptococcal (GBS) disease in British and Irish infants less than 90 days of age concluded in April 2015. Knowledge of the current epidemiology in this age group is needed to assess the impact of current guidelines and provide baseline information for a GBS vaccine programme...

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BPSU study - Haemolytic uraemic syndrome (HUS)

Surveillance of haemolytic uraemic syndrome (HUS) in British and Irish children under the age of 16 concluded in October 2014. A paper has now been published in the BMJ Paediatrics Open journal. Link to the abstract can be found below.

BPSU

Rare disease

Research

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BPSU study - Herpes simplex virus

BPSU surveillance of neonatal herpes simplex virus disease in infants less than 90 days of ages commenced in July 2019 and will run for 4.5 years. This study will assess the current disease burden of HSV to inform future practice on detection, prevention and management of this dangerous disease.

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BPSU study - Juvenile-onset Systemic Lupus Erythematosus

Surveillance of Juvenile-onset Systemic Lupus Erythematosus (JSLE) commenced in September 2017. This study aims to determine the incidence of JSLE in children and young people in the UK and Ireland. The data will be analysed to better understand the epidemiology and clinical features of the disease ...

BPSU

Rare disease

Research