This will help inform future planning for times of national crisis such as a natural disaster, another pandemic, terrorist incident or other cause of nationwide disruption.
Is it safe to go outside?”
We started this work in May 2020 and we'll continue through this year. We'll be sharing findings and resources on this page, so look out for updates.
The insights from the young people we're working with will inform a number of our own programmes and the wider sector - including our Paediatrics 2040 programme, our quality improvement sharing hub QI Central and our workforce impact tracking of COVID-19.
They'll support recovery and surge planning as we move through to reset, restore and recover child health services - particularly for our programmes such as RCPCH Ambassadors (where members acting as local advocates for children and young people), the NHS Long Term Plan's children’s transformation board and health and social care trust boards across the UK.
Virtual health services
[We need] clear information, no waffle, more support for families and children and be able to choose how to see your doctor.
Sixty young people from all four UK nations participated in focus groups led by RCPCH &Us in May and June 2020 - exploring healthcare experiences during lockdown. We were also lucky enough to observe other sessions in June with 20 additional young people, also sharing their virtual health experiences.
Young people shared their experiences from lockdown:
- "CAMHS phone calls happening but not to everyone, also problems about having everyone listen in at home so not telling them what is going on” - young person, Northern Ireland
- "Children and young people matter during COVID-19 and should be part of the solution and should consult with them" - young person, England
- "I’ve not spoke to anyone about it [shielding], not my friends it’s a bit odd to talk about it, so I’ve just become withdrawn with it all" - young person, England
- "When lockdown was announced I went home [from university], luckily I had kept my home GP and was able to get prescriptions for long term condition" - young person, Scotland
They also shared their experiences on virtual health appointments:
- “They should have a range of options as some get anxious on a phone and some get anxious meeting the professional in person so they need both options.” young person, Wales
- “Remember that for some YP it is becoming too much with everything happening in their bedroom: school, friend socials, mental health appointments/health consultations. You can't get away from it space wise” - young person, England
- “Offering online appointments issue is that sometimes at home with the family there is no safe space to have confidential call and feel safe that no one is listening in.” - young person, Scotland
- “Phone doctors' appointments are good because they get back to you quick but they can’t see you like if you need to show them your eczema,” - young person, Northern Ireland
What do doctors need to think about to help make virtual health appointments work? They identified six areas:
- Reassure us about how it will work
- Give us choice of how to talk with you
- Help us to keep it private when we are at home
- Help us to prepare for our virtual appointment
- Make it easy for people without good WiFi access
- Make it clear and simple about how we get help when we need it
When we looked at all the results of our consultations, we noticed these common themes about accessing virtual health services:
- Burden: A sense of having to make tough choices about accessing healthcare services, protecting their family or concerns relating to their future due to COVID-19. There is also a sense of the weight of COVID-19 in relation to space; for some young people it is becoming too much with everything happening in their bedroom: school, friend socials, mental health appointments/health consultations. Lots of comments about increasing anxiety due to the pandemic.
- Choice: Young people shared their appreciation of being able to access health services in person, on the phone or online, and would like this choice to be carried forward post COVID-19.
- Confidentiality: Accessing health services from home has resulted in privacy issues for some young people who did not want to access mental health support in earshot of their families or talk through health concerns in fear someone could hear, create a code word for children and young people to share with health care professionals and have jointly developed expectations to support virtual conversations.
You can read more about what children and young people said in our Paediatrics 2040 post-pandemic report. We have also helped provide links to resources about online health appointments or online group work with children and young people on QI Central.
Supporting mental health in a national crisis
Remember that for some young people it is becoming too much with everything happening in their bedroom: school, friend socials, mental health appointments/health consultations. You can't get away from it space wise
Young people have been identifying and reviewing apps and resources that support mental health and emotional wellbeing during a national crisis. Between May and August 2020, over 25 young people got involved through sessions.
In part one, young people shared ideas and experiences of tools, resources and strategies that they used - or felt were missing - when they needed mental health support during lockdown. We had a big list of apps, websites and information to look through. They came up with great ideas: where there are gaps in the information, or problems with what's already out there. They also shared their personal experiences of the changes in mental health support they have had through lockdown and the impact this has had. Paediatricians also shared their ideas of where there have been good resources or gaps for their patients.
In part two, young people reviewed the findings and prioritised. The main themes were:
- Too much information, overwhelming
- Information too generic
- Mental health services not working through online channels
- Peer support
- Challenges linked to therapy virtually during lockdown
- Adults not knowing where to signpost young people to
- Education wellbeing services through lockdown being different in different areas
In October, 14 young people from four different projects took part in a session facilitated by RCPCH &Us young people to create solutions to tackle the top three big problems;
- Mental health services do not use the online channels effectively to reach young people
- Peer support is the preferred option for young people, but they can't always access it
- Online therapeutic support not geared up for a crisis like COVID-19
In November 2020 we will be publishing a short report about project and a video with the young facilitators explaining what happened.
We were really lucky to receive a legacy donation from an RCPCH member’s family for this project and would like to say a big thank you for thinking of RCPCH &Us
Services and us - voices from specialist experience groups
I’ve not spoke to anyone about it [shielding], not my friends it’s a bit odd to talk about it, so I’ve just become withdrawn with it all
We're supporting workshops with children, young people and young adults from a range of backgrounds, including those with long term conditions, from vulnerable groups or with specific health care experiences such as LGBT+ young patients. We looked at specific experiences, expectations and perceptions on services.
In summer 2020 we hosted one workshop with young people and young adults who have been shielding. We've shared our report from this with NHS England & Improvement to help inform guidance and planning for life after lockdown.
Some key themes from the workshop on shielding included:
- Support the mental health of young people who have been shielding as they integrate back into not-shielding
- Improve communication and messages shared about how to shield and what needs to happen when
- Make sure support services recognise under 25s are shielding too, so might need extra support. For example, online shopping slots were available for over 70s at the start of lockdown, but under 16s were being able to get prescription deliveries
The Association of Young People’s Health (AYPH) with support from RCPCH &Us, worked with three organisations to find out what young people from different backgrounds thought about their pandemic experience. Key themes from young carers, Gypsy and Traveller young people and those from LGBT+ backgrounds were:
- Accessing health services: it needs to be clearer how young people can do this, what they are entitled to and how their rights and confidentiality will be managed
- A range of ways to engage: there need to be digital options and other ways to get health support as not everyone has access to devices or data
- Clear communication: those shielding or supporting family members or where shielding really felt that communication wasn’t clear or supported them in managing complex conditions
- Importance of social support: online social support groups like youth groups and school clubs really helped support mental health, accessing information and having something else to do that was positive
- Understanding the impact of inequalities and stigma: for those that were from different groups and backgrounds, the effect of COVID-19 went beyond physical health and included housing, safety, mental health, and the stigma towards different groups creating a barrier to accessing health support
- Being at home means different things for different people: for some it was protective, for others it was challenging, and this needed to be more understood and planned for by services.
Thank you to the young people from the York Travellers Trust, Richmond Carers Centre and Free2B Alliance for sharing your views with AYPH and RCPCH &Us.
Sharing experiences with our members
In the chaos I'm thankful to a team of NHS heroes who step into a mess that others step away from. You are truly appreciated.
Young people from RCPCH &Us have been sharing their experiences about life in lockdown in our members magazine, Milestones. Every member gets this in the post four times a year, and can read it online on our website.
Find out more
If you would like to be involved or to find out more about our approach, contact us email@example.com.